Search found 19 matches
- Wed Dec 22, 2010 9:16 pm
- Forum: OT- "THINGS" that help
- Topic: Where is everyone? How is every one?
- Replies: 3
- Views: 2726
Where is everyone? How is every one?
It's been a long time since anyone posted. It would be great to hear how you're all doing. Me? On a scale of 1 to 100 on some days I'm at a 1 and some on others I'm closer to 100. Never tremor free of course and never able to stand without holding on to or leaning against something, but sometimes be...
- Wed Dec 08, 2010 9:35 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Baclofen
- Replies: 6
- Views: 3382
Re: Baclofen
I too have been taking neurontin/gabapentin for many years and find that it helps a little. I'm still experimenting with how much to take and at what intervals. I don't think it affects my cognitive functioning but it does sometimes affect my mood--for the better. Sometimes I find myself feeling ine...
- Fri Nov 19, 2010 9:51 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: DRUG CLONAZEPAM
- Replies: 23
- Views: 12133
Re: DRUG CLONAZEPAM
Hi Lynne, I have been taking gabapentin for many years and find that it helps moderately. With it I have occasional, very welcome, moments of steadiness. I take 200 mg at a time--3 or 4 times a day--quite a low dose. The strange thing about it is that I feel most steady after my second dose of 200 m...
- Mon May 31, 2010 11:57 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: My brilliant discovery
- Replies: 0
- Views: 2996
My brilliant discovery
In the 30 + years that I have had OT, washing my hair has posed a problem. Standing in the shower became increasingly difficult, now impossible. I had a seat and hand held shower installed in my stall shower; it was very uncomfortable with the water constantly spraying into my face. So then I washed...
- Thu Oct 16, 2008 6:44 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 241222
Re: New to the forum? post a quick introduction
Hi In response to your question about how bad does it get, everyone is different and has a different experience. But I have had OT for about 30 years (for the first 20, like you, thinking it was an anxiety disorder), and I do not think my condition has gotten especially worse. It was dreadful at the...
- Thu Aug 28, 2008 5:35 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Trouble kneeling?
- Replies: 7
- Views: 4741
Re: Trouble kneeling?
Hi Lynda, After I read your post, I got down on my knees, and -- yup--I felt just as shaky and unsteady as when standing. When I sit unsupported on a chair, I also feel shaky; I need to be able to lean back. I guess like many of you I'm most comfortable lying down and do a lot of activities in that ...
- Sun Aug 24, 2008 10:45 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Gabapentin
- Replies: 0
- Views: 2830
Gabapentin
Hi, Thought I'd weigh in on gabapentin. I've taken it for 13 years, first in combination with clonazepam which made me sleepy. After a minor fender bender I decided I needed to be more alert and discontinued the clonazepam. I take 400-600mg a day. If I try to go higher I feel headachy and unable to ...
- Fri Aug 01, 2008 8:18 pm
- Forum: OT- "THINGS" that help
- Topic: post your product reviews here.....
- Replies: 39
- Views: 19337
Re: post your product reviews here.....
Hi, A shopping cart with a fold down seat seems like a great idea. I saw another one on the Active and Able website for $49 and will probably order it (to add to my collection of cane seats, sports seats etc.) I could not figure out how to create a link to the site, but it is easy to find through on...
- Thu Jul 24, 2008 8:07 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 194430
Re: How is everyone?
Hi again, This is to report my success at the 99 cent store! This time there were only 4 or 5 people in line and I was able to get to the check out counter before panic set in. I felt that the sense of support from so many people experiencing just what I do helped me to go back and get through. (How...
- Thu Jul 24, 2008 5:47 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 194430
Re: How is everyone?
Hi all, I too like the idea of sharing our daily trials and tribulations. I loved your story about the eggs, Joan. I laugh when I think about it. I am at present about to go to a local 99 cent store. I went there a couple of days ago, saw that there were only one or two people in line at the cash re...
- Mon May 05, 2008 4:16 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: OT sufferer in South Africa... Questions
- Replies: 3
- Views: 2834
Re: OT sufferer in South Africa... Questions
Hi Tan, Welcome to the Forum! I've had OT for 33 years--unbelievable!--and am still struggling to find ways to cope. But I'm certainly doing a whole lot better than when it all started. Like you, I often have extreme shakiness when I have to stand in a line--or on a ladder--or walk in the dark--or w...
- Sun Apr 27, 2008 9:27 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Do any of you have phobias?
- Replies: 2
- Views: 2122
Re: Do any of you have phobias?
Hi Joan, I have enjoyed your posts. I not only have a phobia about being a passenger in a car but I'm a therapist who specializes in phobias. Which came about from thinking I was suffering from a social phobia when I first noticed the symptoms of OT. When we moved to a new neighborhood in 1975, I wa...
- Tue Apr 08, 2008 2:03 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: A little help needed
- Replies: 6
- Views: 2929
Re: A little help needed
Hi Richard, Yes! I do find that I am more stable if I stand on one leg--(holding on to something of course--without leaning or touching something I cannot stand on one OR two legs.) Whenever I'm at a checkout counter, bank or whatever I always lean on the counter and stand on one leg. I was going to...
- Fri May 25, 2007 6:29 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Lyrica and Topic "Help is here!!"
- Replies: 4
- Views: 3356
- Sat Jul 22, 2006 7:14 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Life style with OT
- Replies: 7
- Views: 5244