The Orthostatic Tremor Forum (archive)

Marlana, as a suggestion I would recommend that you copy the first page of this site and send to the doctor before your appointment with him. I say that because most neurologists have never heard of POT and it will clue him in on what you believe your problem is with the shaky legs. My daughter and ...

Marlana - Everything you wrote, I could have written the very same. Ditto to everything, even the same year that I felt the shaky legs start. The story of this disease. Have you seen a movement disorder doctor yet? I would recommend going to a teaching university, if you have one nearby, for a diagn...

Dave, please post for me what you mean when you say OT Plus. This is unfamilar to me and I and maybe others on this site need more information, everything helps all of us that suffer from this disability.

Yes, to all of the above. Recently I have noticed a tremor in my voice but not any other part of my body except, of course for the legs etc. My standing time is almost zero now. My cooking is down to almost zero also, except for something very easy, quick and of course when I am seated. Meds do not ...

What a glorious announcement. We all have been waiting for this good news. Many thanks to all of you that worked so hard with fund raising etc., without your diligence we may have not made the mark for research. I know I will continue to give to NORD to help get the research moving. Perhaps now we w...

Hello Tracey - Welcome to this board which is a leaning post for all of us that suffer from the same disease. Here you can express all your thoughts and no one considers it "moaning" because we all feel the same way. It must be very difficult for you having young children still at home and...