The Orthostatic Tremor Forum (archive)

Hi Rose, it has been almost a year since I was diagnosed and I learned there is a lot of misinformation and misunderstanding with this rare disease. However, I found a neuropsychologist in North Carolina, USA who provided a ton of information in a webinar that she presented on this disease. Her name...

This is a stool I recommend, it adjusts to whatever height. It has strap and you can carry easily.

https://www.amazon.com/gp/product/B08N5 ... UTF8&psc=1

Appreciate this post! Great ideas. I bought this stool and it’s wonderful! I went to family gathering and sat on it for an hour and a half out on their deck. The cushion on this stool was worth spending the extra money for me. https://www.amazon.com/gp/product/B08N5LHZSV/ref=ppx_yo_dt_b_asin_title_o...

I am so sad to hear of what is going on with you. I hope others on this website will jump in to advise. I have had OT for about a year now but I do notice when I get up in middle of night, often I don’t have feeling in the bottom of my feet, it is like I can only feel the edges of my feet. I do not ...

EMG confirmed that I have primary orthostatic tremors 15-16 HZ along with postural tremors in arms.

Hello, I am 56 y/o female, started having symptoms in June 2020 and went to my physical therapist and asked her for her opinion and help with my balance issues, standing in shower was when I noticed I was not steady like I used to be, running for exercise caused my legs to ache and weak after going ...