Search found 8 matches
- Sun Jun 02, 2019 12:57 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Fainting
- Replies: 6
- Views: 3425
Re: Fainting
Hi Bevnix, I've never fainted once in my life. But I do recognise the feeling of dizziness, a kind of lightness in the head, which gives me the idea that I might faint any moment. Only when standing that is. As soon as I sit down, the dizziness disappears. According to my neurologist, it's related t...
- Sun May 26, 2019 8:56 am
- Forum: OT - Surveys
- Topic: Survey # 1 - Thoughts, Questions, Feedback
- Replies: 3
- Views: 5927
Re: Survey # 1 - Thoughts, Questions, Feedback
Hello Lynnemariehenry,
Since when do you take Fycompa/perampanel? for a month, four months or longer?
Since when do you take Fycompa/perampanel? for a month, four months or longer?
- Tue May 07, 2019 3:28 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Perampanel
- Replies: 20
- Views: 8494
- Tue May 07, 2019 3:26 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Perampanel
- Replies: 20
- Views: 8494
- Tue Apr 30, 2019 1:49 pm
- Forum: OT- "THINGS" that help
- Topic: SmartPhone apps and the OT tremor... (update)
- Replies: 10
- Views: 15360
Re: SmartPhone apps and the OT tremor... (update)
Thanks, that's very usefull information. Unfortenately, my Iphone is from work, so I don't want to download apps that cost money. It's not available for android. I'll wait till my son comes home from Scotland next sunday, I'll ask him to download the app.
- Mon Apr 29, 2019 1:55 pm
- Forum: OT- "THINGS" that help
- Topic: SmartPhone apps and the OT tremor... (update)
- Replies: 10
- Views: 15360
Re: SmartPhone apps and the OT tremor... (update)
Is there an app available right now? For android or IPhone?
Iseismometer en Liftpulse are not available anymore. There are other 'earthquake-apps' but i don't know how to read the results. it's not in hertz so i don't know what to think of it.
Any recommandations?
Iseismometer en Liftpulse are not available anymore. There are other 'earthquake-apps' but i don't know how to read the results. it's not in hertz so i don't know what to think of it.
Any recommandations?
- Sun Apr 28, 2019 7:25 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Perampanel
- Replies: 20
- Views: 8494
Re: Perampanel
I've read a post on a Dutch facebook-page about OT. It's in French. I'll post it down below, along with an English Google translation. It doesn't seem to be hallelujah all over. There seem to be serious side-effects, and worse: it's said to give a terrible rebound and even stops working after 4-5 mo...
- Sun Apr 28, 2019 7:01 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242418
Introducing myself
Hi everyone, My name is Jolanda, living in The Netherlands. I've seen a neurologist because of increasing tremors while standing. I've been diagnosed with OT, but the neurologist isn't very familiar with this condition. That's why he has referred me to another neurologist, I'm waiting for an appoint...