Search found 8 matches

by Jolanda
Sun Jun 02, 2019 12:57 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Fainting
Replies: 6
Views: 373

Re: Fainting

Hi Bevnix, I've never fainted once in my life. But I do recognise the feeling of dizziness, a kind of lightness in the head, which gives me the idea that I might faint any moment. Only when standing that is. As soon as I sit down, the dizziness disappears. According to my neurologist, it's related t...
by Jolanda
Sun May 26, 2019 8:56 am
Forum: OT - Surveys
Topic: Survey # 1 - Thoughts, Questions, Feedback
Replies: 3
Views: 1721

Re: Survey # 1 - Thoughts, Questions, Feedback

Hello Lynnemariehenry,

Since when do you take Fycompa/perampanel? for a month, four months or longer?
by Jolanda
Tue Apr 30, 2019 1:49 pm
Forum: OT- "THINGS" that help
Topic: SmartPhone apps and the OT tremor... (update)
Replies: 9
Views: 7242

Re: SmartPhone apps and the OT tremor... (update)

Thanks, that's very usefull information. Unfortenately, my Iphone is from work, so I don't want to download apps that cost money. It's not available for android. I'll wait till my son comes home from Scotland next sunday, I'll ask him to download the app.
by Jolanda
Mon Apr 29, 2019 1:55 pm
Forum: OT- "THINGS" that help
Topic: SmartPhone apps and the OT tremor... (update)
Replies: 9
Views: 7242

Re: SmartPhone apps and the OT tremor... (update)

Is there an app available right now? For android or IPhone?
Iseismometer en Liftpulse are not available anymore. There are other 'earthquake-apps' but i don't know how to read the results. it's not in hertz so i don't know what to think of it.
Any recommandations?
by Jolanda
Sun Apr 28, 2019 7:25 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 2213

Re: Perampanel

I've read a post on a Dutch facebook-page about OT. It's in French. I'll post it down below, along with an English Google translation. It doesn't seem to be hallelujah all over. There seem to be serious side-effects, and worse: it's said to give a terrible rebound and even stops working after 4-5 mo...
by Jolanda
Sun Apr 28, 2019 7:01 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1000
Views: 120797

Introducing myself

Hi everyone, My name is Jolanda, living in The Netherlands. I've seen a neurologist because of increasing tremors while standing. I've been diagnosed with OT, but the neurologist isn't very familiar with this condition. That's why he has referred me to another neurologist, I'm waiting for an appoint...

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