Search found 68 matches

by Theresaann
Wed Mar 11, 2020 6:13 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 91151

Re: Pure Qxygen

Please re-read my response: "pure oxygen can be deadly". I stand my ground with ER and EMT experience.
by Theresaann
Tue Mar 10, 2020 4:38 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Muscle fatigue - muscle deterioration - exercising
Replies: 14
Views: 2864

Re: Muscle fatigue - muscle deterioration - exercising

Am I the only one who is frustrated and ANGRY that, because OT is a "rare" condition, there must be an extreme lack of research regarding it? I feel that it's because there must not be any profit in it for the pharmaceutical companies. If a FAMOUS person had it, the treatment would miraculously beco...
by Theresaann
Tue Mar 03, 2020 7:55 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Possible Breakthrough Experienced by OT Patient
Replies: 4
Views: 10813

Re: Possible Breakthrough Experienced by OT Patient

I am truly happy for you. What have you done to alleviate the tremors of Orthostatic Tremor? (No doctor will call you, BTW.)
by Theresaann
Fri Feb 21, 2020 4:16 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Lack of research for this condition. No treatment; no cause; no cure.
Replies: 0
Views: 268

Lack of research for this condition. No treatment; no cause; no cure.

Am I the only one who is frustrated and ANGRY that, because OT is a "rare" condition, there must be an extreme lack of research regarding it? I feel that it's because there must not be any profit in it for the pharmaceutical companies. If a FAMOUS person had it, the treatment would miraculously beco...
by Theresaann
Sat Feb 01, 2020 2:47 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: The use of statins to reduce cholesterol levels for patients with OT
Replies: 3
Views: 367

Re: The use of statins to reduce cholesterol levels for patients with OT

Both my husband and I suffered from leg cramps at night. We each started drinking just PLAIN TONIC WATER (which has quinine in it). Leg cramps gone, even with just occasionally drinking it now. I am the one with OT for now and the last three years. It can be very depressing, even though I know it co...
by Theresaann
Thu Jan 16, 2020 3:51 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Cautionary tale; it's not always OT
Replies: 7
Views: 6375

Re: Cautionary tale; it's not always OT

I never associated those aches with OT! It never donned on me that I never felt them before until OT. Same thing happens to me. I, for three years, have thought it was just my back problem acting up. Thanks for sharing that info.
by Theresaann
Fri Jan 10, 2020 7:02 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Cautionary tale; it's not always OT
Replies: 7
Views: 6375

Re: Cautionary tale; it's not always OT

You are in my prayers. From what I have read, OT rarely comes with pain. Alaska awaits you!!! Miracles happen!!!
by Theresaann
Sat Jan 04, 2020 8:36 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119062

Re: New to the forum? post a quick introduction

Sorry that you might have to join our "group". If you don't get OT as a diagnosis, get another opinion, and another.It could be that it isn't OT, but I'd get the other opinions if necessary. Many physicians haven't even heard of the condition. It's a miserable condition. Luckily, I don't have pain w...
by Theresaann
Sat Dec 28, 2019 7:31 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 91151

Re: How is everyone?

From a medical point of view (Nursing), "Pure Oxygen" can be dangerous. Google describes it: "Pure oxygen can be deadly. Our blood has evolved to capture the oxygen we breathe in and bind it safely to the transport molecule called hemoglobin. If you breathe air with a much higher than normal O2 (Oxy...
by Theresaann
Fri Dec 13, 2019 11:09 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119062

Re: New to the forum? post a quick introduction

It truly is an annoying condition. I have had it for three years. I suggest a "Rollator Walker" - a walker with four wheels, hand brakes, a seat, and a pocket under the seat. There are other accessories available to attach if more carry space is needed. I suggest this because the hand holds are bett...
by Theresaann
Fri Dec 13, 2019 11:00 pm
Forum: OT- "THINGS" that help
Topic: dbest-product Trolly Dolly with Seat
Replies: 1
Views: 534

Re: dbest-product Trolly Dolly with Seat

I would not think this product would be good for OT. I suggest a "Rollator Walker" - a walker with four wheels, hand brakes, a seat, and a pocket under the seat. There are other accessories available to attach if more carry space is needed. I suggest this because the hand holds are better for balanc...
by Theresaann
Thu Nov 07, 2019 11:44 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Sweating
Replies: 2
Views: 362

Re: Sweating

Yes. It's awful and embarrassing. I think it's because of the extreme effort involved to stand up. I resolved that issue by using a Rollator - a walker with four wheels, a SEAT, and hand brakes. I use the seat OFTEN - especially if I have to wait in line. I really don't care what other people think....
by Theresaann
Mon Oct 28, 2019 7:31 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Good news,....for me and for some of you
Replies: 3
Views: 1170

Re: Good news,....for me and for some of you

So, did I miss something here? What was the new diagnosis? What can be done for it. I would get another, and another, and another opinion if necessary to ease my mind. Is that MD a specialist in OT???
by Theresaann
Thu Oct 24, 2019 5:58 pm
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 10905

TripAdvisor

I posted my review of ADA non-compliance by a certain hotel in TripAdvisor.
by Theresaann
Mon Oct 14, 2019 3:09 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Muscle fatigue - muscle deterioration - exercising
Replies: 14
Views: 2864

Re: Muscle fatigue - muscle deterioration - exercising

I think your surmising about muscle atrophy is probably valid. All the years of climbing mountains (Whites in New Hampshire) and hiking to all the Appalachian Mountain Huts in those mountains, and all the years bike riding (sometimes 30 or so miles a trip) hasn't helped my at all. Fatigue, to me, is...

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