The Orthostatic Tremor Forum (archive)

Hi Dr Lorimom, I have to say it's heartbreaking to hear of people going for years with this OT thing, either undiagnosed or misunderstood by health professionals, and for you, a Doctor yourself, it must have been so terribly frustrating. But so pleased you found Dr Diego Torres-Russotto, he may not ...

Hi Fred, Gary and Trudy, Gary, that's a different Facebook group, this one is called Primary Orthostatic Tremor, and it's for Orthostatic Tremor too, here is a link to them and their event page: https://www.facebook.com/events/1736087623095271/ And Trudy, I know you're not on Facebook, I will send y...

Hi Fred (and Son), I received your message and wonderful to hear from someone who understands OT and who is close by, I am in Mornington. I have read your post and so sorry to hear how much you are struggling with OT at the moment but I have to say it's a bugger of a thing to have with no medication...

Hi Gloria and everyone, I am 53 years old and my Neurologist first suspected I had OT 7 months ago, although I had first visited him 3 years ago for balance issues and then I developed a tiny tremor a year ago in the fingers on my left hand. My symptoms had developed slowly over a few years then sud...