The Orthostatic Tremor Forum (archive)

Hello all, Elizabeth from Central Florida here. I met with Dr. Shukla and Dr. Hu today at their request for a follow-up to the Florida Clinical Trial. They expressed their desire to follow-up with the participants (up to 13 now) every six months to see how we are progressing. They have a new padded ...

Thank you Peggy and Gloria :) Today was interesting and tiring. Being a double-blind study, Dr. Hu and I don't know if the treatment today was a sham or real. Dr. Hu said that Dr. Shukla knows. The day went pretty much as outlined in the clinical trial description. There were questions asked by Dr. ...

I met with Dr. Hu and Dr. Shukla today. After being put through the tests to confirm the diagnosis of OT, I've been accepted as patient #9. Dr. Hu said that patient #10 is coming in Thursday and that they are only taking 10 people in the trial. My treatment, videos and tests start tomorrow. I'm exci...

Hello, I'm Elizabeth, snow-birding in Central Florida. I have had OT symptoms since 2002-2003. The neurologist told me in 2007 that no one was doing studies on POT because less than 1% had the condition. He offered no solutions. So I've done the best I could. I've had to sit on the floor in a grocer...

Hello OT friends
I'm brand new here and I am so happy for this group.
Thank you Gloria❤
I live in Central Florida and I've had OT symptoms since 2003. Imagine my delight to see a Florida clinical trial for OT and to hear the wonderful news about Stepford's father.

I was diagnosed as hypothyroid and have been taking Armour Thyroid since 2002. Odd coincidence that my OT symptoms began around 2003?