Search found 8 matches

by DancingThruLife
Wed Oct 16, 2019 9:28 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Muscle fatigue - muscle deterioration - exercising
Replies: 14
Views: 6524

Re: Muscle fatigue - muscle deterioration - exercising

Hi, I was just discussing this topic yesterday. I feel as though the muscles in my legs work extra hard to keep me upright when the tremors kick in. This, in and of itself, is a workout. I also still workout at the gym. So in some ways, I feel as though my legs are working out twice as much and mayb...
by DancingThruLife
Wed Aug 14, 2019 10:00 am
Forum: OT- "THINGS" that help
Topic: Artice in the Washington Post this week about OT...
Replies: 10
Views: 3295

Re: Artice in the Washington Post this week about OT...

Hi, Thank you for bringing this topic up. The article in the Post is discussing POTS, Postural orthostatic tachycardia syndrome. We have POT, primary orthostatic tremor. They are different disorders. As if it's not bad enough having a rare disease that many people have not heard of or cannot underst...
by DancingThruLife
Mon Aug 05, 2019 2:05 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Angela Merkel (DE) and OT
Replies: 10
Views: 3491

Re: Angela Merkel (DE) and OT

Hi Peggy, I experienced full-body tremors before I was diagnosed. Now I know that I need to sit or lean against something so that the tremors do not get 'out of control'. Those full-body tremors is how I first knew something was wrong. I was giving a presentation at work and all of a sudden my whole...
by DancingThruLife
Thu Nov 23, 2017 9:06 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240900

Re: New to the forum? post a quick introduction

Hi Margie1627. My name is Pam. I live in Wakefield, MA, but am spending Thanksgiving in West Harwich. Where do you live on the Cape? I will be here until Sat, in case you see this message. I am so thankful for our OT community.
by DancingThruLife
Sat Aug 12, 2017 9:58 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12175

Re: 2017 September OT Meeting/Research

Hi Peggy, There is nothing in my spam folder. I was corresponding with my contact and then all of a sudden there were no replies to my emails. You answered my question re: the groups, so I am all set. I have since had a lovely chat with my contact. First person I have ever spoken to that has OT! We ...
by DancingThruLife
Mon Jul 31, 2017 10:26 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12175

Re: 2017 September OT Meeting/Research

Peggy,

Thank you for explaining this to me. I really appreciate it. I have informed my contact that I want to be in Group 2. I look forward to meeting everyone. Pam
by DancingThruLife
Fri Jul 28, 2017 4:50 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12175

Re: 2017 September OT Meeting/Research

Hi Peggy, thank you for the quick reply. I think I must have missed some pieces of info, because I couldn't figure out the group info. From what I could gather, it seems like group 1 and 3 are arriving Sunday, yet group 1 is going home Wednesday and group 3 is going home on Saturday. Not sure why gr...
by DancingThruLife
Fri Jul 28, 2017 3:19 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12175

Re: 2017 September OT Meeting/Research

Hi. I would like to attend the meeting and be part of the research. I sent the requested info to the contact person listed per the initial of my last name, but have not heard anything from Dr. Torres. Is there something else I need to do in order to register for this? I am getting concerned, as some...