Search found 9 matches

by drcraige
Thu May 23, 2019 10:02 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 8322

Re: Perampanel

Hello all ! I just found Peggy's email today. I was hoping to be able to publish something after correlating the data. Unfortunately, there has not been enough participation in the surveys that I have been conducting on Fycompa to draw any definitive conclusions. It seems to be helping some and not ...
by drcraige
Mon Oct 08, 2018 8:06 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 8322

Re: Perampanel

There has been a lot of buzz about Perampanel on Facebook. In fact, we have created a Facebook Page dedicated to following fellow POT Members presently taking the medication. Seeing some positive signs from people. Anyone interested in following and gaining information join us. Please note we do req...
by drcraige
Mon Oct 08, 2018 8:02 pm
Forum: Research Papers
Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
Replies: 13
Views: 13520

Re: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel

There has been a lot of buzz about Perampanel on Facebook. In fact, we have created a Facebook Page dedicated to following fellow POT Members presently taking the medication. Seeing some positive signs from people. Anyone interested in following and gaining information join us. Please note we do req...
by drcraige
Thu Aug 23, 2018 12:34 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Communication
Replies: 4
Views: 3926

Re: Communication

Hello Everyone! I am one of the Administrators of the Fycompa and OT Facebook Page. Our purpose was to have a place for all taking Fycompa (generic: Perampanel) to report their progress with the medication. It is our intent to collect first hand results from our members of what appears to have been ...
by drcraige
Sun Aug 12, 2018 10:32 am
Forum: OT- POLL
Topic: has anyone used Medical Marijuana to help with spasms and rigidity?
Replies: 12
Views: 5101

Re: has anyone used Medical Marijuana to help with spasms and rigidity?

I live in FL where medical marijuana is legal. I started with a 1:1 ratio cbd to thc. Didn't help. Went to 40:1. Not sure yet as it takes awhile to adjust. I'll report back after I have used for a month. Hi Bobbinj, I live in FL as well & I am interested in your Medical Marijuana trial. Any rel...
by drcraige
Mon Jul 17, 2017 10:46 pm
Forum: OT- "THINGS" that help
Topic: Sharing a New Wearable Chair Concept
Replies: 2
Views: 2269

Sharing a New Wearable Chair Concept

I just came across this today and thought that it might be useful for some within our community. https://www.facebook.com/techinsider/vi ... 405352784/
by drcraige
Thu Sep 01, 2016 9:17 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241025

Re: New to the forum? post a quick introduction

Thank you Gloria for your quick reply.

In regards to your toes, do you wear foot orthotics or insoles that are made of a material that is softer and contours to your feet? These types of devices are often helpful.
Craig
by drcraige
Thu Sep 01, 2016 8:55 am
Forum: OT- POLL
Topic: An OT Polling Series - Review of Systems
Replies: 6
Views: 2685

Re: An OT Polling Series - Review of Systems

Hi, This is a great poll. It would be great to correlate with even more co-entities. May I suggest the investigation of the following Prior to noticing OT symptoms such as: Sleep Apnea; Herniated Discs; Anxiety. Another correlation might be if anyone recalls having a tendency of almost habitually mo...
by drcraige
Wed Aug 31, 2016 1:55 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241025

Re: New to the forum? post a quick introduction

Hello Everyone! I recently came across this site while searching some of my symptoms. I turned 60 years old in February and I am a retired podiatrist. I recall vaguely hearing/learning about Orthostatic Tremor during my medical education and I never came across anyone with the symptoms and/or the di...