The Orthostatic Tremor Forum (archive)

Can anyone advise on holiday insurance please?....as this condition is rare there is no listing on any site that I've tried to obtain insurance for an upcoming break abroad.
I'm not at the stage of using any aids, so do I need to declare that I have O.T?

Your advice would be greatly appreciated.

Dee

Dear Vanna, I feel so sad for you as you sound so alone, please don't feel this way, now you have been diagnosed you will find many new friends on this forum who fully understand everything you are going through,please stay strong. Sending best wishes to you. DEE.

Thank you Gloria...just had a read through the trials...interesting...thinking of trying out some exercise classes for over 50's that have motorised equipment..I know that I need to improve my fitness, strength and hopefully decrease the dreaded fatigue...I was a very active person beforehand and kn...

Hi all O.T friends....long time from I posted..diagnosed last May...was put into 3600mg of Gabapentin per day..although I struggle with extreme fatigue maybe down to mixture of meds/condition? I have noticed lately upper limb tremor,migraines have decreased compared with onset..hopefully this will c...

Hi Roberta...interested when I read your post...I also when questioned by my neurologist if I ever had a significant knock to my head as they discovered I had excess fluid on my brain scan...which is believed to be longstanding...I reported that indeed at the age of 12 years I too had been sliding o...

Hi Everyone...I was diagnosed almost 1yr ago with O.T.and.upper motor neuron signs .noticed mild symptoms possibly 18months prior..desire to sit frequently..tripping..and shaking in legs on standing/descending stairs etc...progressed from there ...seems several have also migraines,I too was diagnose...

Hi Scott....It's been a while from I posted on the site...I was diagnosed last May with O.T ...I can fully relate to the inner tremors you describe ..mine started off Approx the year beforehand starting like a crawling feeling underneath my skin and sometimes like a vibrating sensation.all over my b...

Hi Scott....It's been a while from I posted on the site...I was diagnosed last May with O.T ...I can fully relate to the inner tremors you describe ..mine started off Approx the year beforehand starting like a crawling feeling underneath my skin and sometimes like a vibrating sensation.all over my b...

hi Nin, also having the same issue.......glad it's not just me lol

Hi everyone, reading through these posts it seems many members that take Gabapentin are on quite a low dose, I have been presribed 3600mg per day of this medication, feel very fatigued much of the time,although on my 'very few better days' (less wobbly) I dont question is it the meds :?: I was told ...

Hi Kelly, I found your post very interesting, I too sustained a back injury prior to my diagnosis of OT, I was told I had 'put out' my sacaroliac joint is this the S1 joint you refer to? .... I later had been sent for an MRI back scan which obviously didnt show up the instability i still have in thi...

Thank-you Ladies :) for taking the time to reply to my post, I too have constant bruises on the side of my leg as I,m constantly bumping into things :roll: unfortunately Gloria I just dont have the space to store a treadmill, my vibrating plate use to be my favourite form of excercise somehow I cant...

THANK-YOU GLORIA, that's quite interesting your explanation as to the symptoms of o.t whilst walking..will definitely put your advice into practice, and step up speed, my thinking is i'm a bit apprehensive as i feel unsteady especially if i'm on uneven ground, and also lack confidence if i am on my ...

I too think this is a fabulous idea, even my own doctor couldn't explain it to me as he admitted he knew nothing about O.T, my neurologist although very good in being able to put my symptoms , follow up with tests and put everything together AND figuring out what I had didn't explain it, I'm due to ...

I often wondered about this, as I'm quite new to a diagnosis. I can feel my walking movement affected...it feels like a juddering movement ..not graceful at all? same when I am descending stairs does anyone else feel this? DEE