The Orthostatic Tremor Forum (archive)

thank you Susie
I have put a request in to join the OT facebook group. I am a mad facebook user. Very interested in attending a conference.

I am exactly the same I am not on meds now seeing another neurologist end of July
It is the worst thing and I am not going to give in
Travelling is the worst in airport queues
I am in Sydney Australia
I read about those injections would be
Interested to know how it went for u

could not agree with you more. I find people do not understand so I have given up trying to explain to others that I cannot stand for long or even short periods. My recent trip to Europe required a wheelchair at the airports which was embarrassing well that's how I felt anyway. I think it is importa...

My biggest problem is I am unable to stand for more than 30-60 seconds without the urge to sit If I can't sit then I sweat and feel really sick My doctor has tried two medications but I am now taking Nothing I can't honestly say no improvement either way I see him in June and will discuss options Th...

Yes stress levels don't help
Nor to family not believing me
My husband is a brick but children and partners not great
I must say it has caused a big rift in my family
It's not the OT but the way people react

I was on CLONAZEPAM to start but made me drowsy and depressed a little Then gabapentin 1800 per day my once good memory started to decline so off them I think it made some improvement I am going to look into alternate medicine and see specialist in June I have a script for another drug that is given...

I can relate to what u r saying
I find stress is the big thing for me
I start to sweet and get very hot
It is still warm in sydney which does not help
Anyway thanks for this site makes u realise we r not alone

I live in Australia and was diagnosed with or just before xmas I had a accident about 8 years ago and I thought it was from that but the neulogist diagnosed ot I can't offer u much help but I understand your post We went OS at xmas which I have done many times but this trip was hard especially at th...

I have discussed this subject with my specialist and he does not know of anyone. Just thought I would ask

I have read the posts regarding DBS. Does anyone have any feedback on the outcome of the procedure. Medicines are not working for me. I have discussed this procedure with my specialist.

Hi My name is Eunice. I was diagnosed with OT late in 2015 (so recently). I had issues standing for about 6 years prior to obtaining my diagnosis. As I had a previous knee injury I was told it was that was causing the unable to stand problem. I was very lucky that I was referred to a top specialist ...