Search found 16 matches
- Thu Mar 16, 2017 5:16 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: After Illness
- Replies: 5
- Views: 3372
Re: After Illness
Bev, As an Asthmatic with a history of bronchial ailments I can testify that a severe bout will add to anxiety and confirm that anxiety exacerbates whatever it is that causes our debilitaing tremor. From my own observations I find that air travel increases the incidence of chest infections and recov...
- Wed Mar 08, 2017 3:58 pm
- Forum: OT- "THINGS" that help
- Topic: Cannabis Oil
- Replies: 4
- Views: 5461
Re: Cannabis Oil
I had posted a query a few years ago on the efficacy of cannabis to the alleviation of our condition. As I never received a reply I assumed that this might be a taboo subject. Some people with MS that I know swear by the relief from their symptoms (which are similar but patently more disabling than ...
- Wed Mar 08, 2017 3:40 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 195881
Re: How is everyone?
Hi, Gloria -and all the OThers (is that a suitable term for Glorias Gang?) Further to my first meeting with my fellow sufferers at the Houston 2016 convention I am still eager to learn more about our shared condition. Without any disrespect I would note that we had many other things in common apart ...
- Fri Jul 01, 2016 12:42 pm
- Forum: OT- POLL
- Topic: An OT Polling Series - Review of Systems
- Replies: 6
- Views: 2760
Re: An OT Polling Series - Review of Systems
How do you register to complete the questionnaire? I have had a series of spinal problems ultimately resolved by spinal fusion but no experience of brain trauma. The only dizziness experienced has come from the medications prescribed for OT. Always happy to contribute to the common (uncommon) cause....
- Tue Mar 15, 2016 4:47 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242771
Re: New to the forum? post a quick introduction
Gloria, Jeff, Beth, Thank you all for your commitment and compassion. Now that we have all met each other and have put faces to names can you tell us how we can send private messages to individual members? If we post our private email addresses on the public website that could be open to intrusion. ...
- Tue Mar 15, 2016 1:55 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 195881
Re: How is everyone?
Hi, Mike, Great to meet you and the other members of the OT Gang in Houston. I took your tip and upgraded my homeward flight to Premium. I figured that 170 Euros was a fair price for an aisle seat with free leg room and a reclining seat, however, within an hour the empty seat accompanying mine was g...
- Tue Mar 15, 2016 10:18 am
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Meeting Houston - March 10-11 discussion
- Replies: 20
- Views: 6049
Re: OT Meeting Houston - March 10-11 discussion
Gloria, Jeff, Beth, Thank you very much for maintaining the momentum. This meeting emphasised your commitment to the cause of improving the lives of OT sufferers. Much thank also to Pat and Maggie for arranging the venue and speakers. Salient observations; Jane's excellent (unscripted) summary of sy...
- Tue Jan 12, 2016 11:13 am
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
- Replies: 27
- Views: 10573
Re: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
I am looking forward to meeting fellow travellers at Baylor. Have we established a hotel yet? I did send an email to Pat over a week ago but never received a reply.
All the best
All the best
- Sun Nov 08, 2015 9:47 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Has anyone else experienced this?
- Replies: 10
- Views: 3188
Re: Has anyone else experienced this?
I would recommend getting the Flu Jab while in the UK, it is free for over 65 and only about £10 - £20 for youngsters. Should help to prevent the most common strains but, remember, there are some odd viruses going about which can catch you unawares. With our balance problems the symptoms of Flu are ...
- Tue Nov 03, 2015 4:05 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Has anyone else experienced this?
- Replies: 10
- Views: 3188
Re: Has anyone else experienced this?
I had a similar experience when returning from an overseas trip. During the flight I felt my tremor build up although it never normally affects me in a sedentary position. After the flight I could not stay upright and for the next few days I struggled with balance and some nausea. In retrospect I th...
- Wed Oct 07, 2015 10:43 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Give prisms, vision therapy a shot
- Replies: 44
- Views: 12882
Re: Give prisms, vision therapy a shot
Prism therapy sounds like a breakthrough that is worth a try. Anyone know if any licensed practitioners in UK :?: As no positive response received I did some probing and eventually tracked down two optometrists who are recognised in this form of therapy; Robert Longhurst of Chelmsford and Ian Jordan...
- Thu Oct 01, 2015 9:08 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Where in the world is OT?
- Replies: 18
- Views: 34635
Re: Where in the world is OT?
Great data collection and presentation. How come no indication of OT in China, India or Russia? Do they call it something else in these countries?
- Thu Oct 01, 2015 9:02 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How many people have OT?
- Replies: 15
- Views: 32571
Re: How many people have OT?
Thanks, Gloria, I am always impressed by your constant, careful attention to "the flock." My observation is based on the reaction I get after flights. Since retiring I have not done much air travel but have noticed exaggerated symptoms of unsteadiness, dizziness and affected gait along wit...
- Wed Sep 30, 2015 11:42 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How many people have OT?
- Replies: 15
- Views: 32571
Re: How many people have OT?
How many people with OT have never been on an aeroplane? My experiences with flying have led me to consider compression / decompression as a causal factor. Vertigo? Is that a factor? On reading the comments on ophthalmic conditions I wonder how these are all related. I have noticed as my condition d...
- Tue Sep 29, 2015 9:22 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Air Travel
- Replies: 9
- Views: 3913
Re: Air Travel Decompression
Thanks all,
With everyone else I will be sure to plan my journeys better and take full advantage of the assistance available. I would like to pursue further the effects of decompression on fellow OT sufferers. Does anyone else have similar experiences?
With everyone else I will be sure to plan my journeys better and take full advantage of the assistance available. I would like to pursue further the effects of decompression on fellow OT sufferers. Does anyone else have similar experiences?