The Orthostatic Tremor Forum (archive)

hi Theresaann, I noticed you live in massachusetts!!! so do I,and would love to connect!!! Anyway, I have a sling cane that I take with me to grocery shopping. I put it in the cart while shopping,when I get to checkout I open it out ,and not very gracefully slip it between my legs so I can sit to un...

I agree!the heat and humidity are not good for me either! We are in Massachusetts (anyone else from Massachusetts?) and it'seems we are lucky compared to many other States . Thankfully no floods or tornado, etc. Guess we just plug along and do the best we can ,while we can. Hang in there-soon we wil...

Hi Dottiesport ( hope I got that right) I have had rolling stools for s few yes now and couldn't do without them! Ad you said- laundry is soooo much easier!! Cooking, just getting around the kitchen- what a lifesaver! Now I just need something to help with making the bed- instead of sitting while I ...

I agree 100% , Gloria!!

Hello, It has been a long time since i have checked in. I too do Chair Yoga twice a week-it is a great feeling afterwards, but has little effect on the tremors. But just feeling good for a while is a plus!! i have rolling chairs all over the house-to cook, do laundry, etc.
Fran

Thank you both, -Mike and Gloria for your input on behalf of all of us that suffer from O. T !!!
Interesting interview-describes it to a tee!
God Bless, and Gloria- thank you so much for this site!
Hugs,
Fran

Gloria, my thoughts and Prayers are with you. I am a 2 time Breast Cancer Survivor. you can get through it. I am not making light of it, but just keep your positive attitude and you will make it!! I also had a scare this summer -I thought oh! no! not again, but it turned out to be scar tissue.Thank ...

Sounds good! Keep us posted!
Fran

This is a wonderful idea!!! Thank you sooooooooooo very much!!
Fran

Sue, what does your seat look like? is there a web-site I can go to check it out. I am seriously considering getting one . I finally gave in to getting a seat for the tub. Guess I was In denial, didn't think I really needed it. But started to get worried about standing in the shower. I wouldn't take...

Joyce, I have been taking Clonazapam for a few months now. Can't say that it really helps a lot, but it takes the edge off for a while. Also relieves some of my anxiety about it. I take it as needed, but don't want to start taking too much , because there is no where else to go with it. I'm consider...

Joy, you sound exactly like me! No one could tell me what the problem was.I told Dr. after Dr. they all seemed baffled. Finally found a neurologist that told me what it is. I am on Clonazapam. Makes me sleepy if I give into it. But if I just try to keep busy, it helps somewhat. Not as much as I woul...

Betty, yes , I have had the feeling of FREEZING-it's awful. Feels like your legs weigh a ton and just won't move right away. I haven't had to ask for a wheelchair, but I have bought a seat for the shower, because I was afraid to shower when there was no one else home!!! I finally gave in and bought ...

WOW!! What a great opportunity for you!!! I was told by my Neurologist that he has only had 1 other patient with OT! I only saw him once and he diagnosed it right away. I had seen 2 other Neurologists an d neither of them knew what it was. one said it was just Neuropathy from the diabetes. WRONG!!!!...

OOPS! sorry, I see where you are in Canada-didn't look before I wrote the question!!!
Fran