The Orthostatic Tremor Forum (archive)

Hi patrica, l do experience a tingling in my feet and hands when I am laid in bed or if I wake in the night. I have had ot for a while but was only diagnosed this year. I tried medication but found that it had no effect apart from making me very sleepy. So l am just plodding on. Do you find when you...

Hi Mike, This site is wonderful as l feel that there are always people who know and care about the problems that occur. Stress seems to make matters worse and the constant struggle to look normal in turn causes the stress so one fuels the other.l have stopped taking my medication as I found l just c...

Hi Leanne, You have described exactly how l feel. I remember the first time I felt the tremor it was at a funeral for a very good friend. As I set off to go up the steps to the church my legs seemed to give way. Then as I waited for the bus on a morning I found it difficult to stand still. My job wa...

Thanks its nice to know you understand how I feel.
Regards Denise

Hi, l hope everyone is well as possible? I have an appointment with my neurologist this week but l am wondering if l should go as I have decided not to take medication he has precribed as it makes me foggy and really doesn't help. He also charges a great deal for 5 minutes of his time. My doctor say...

Hi all, I was prescribed the medication clonezapan but stopped taking it as I didn't like how I was feeling. My memories not the best but the medication made it far worse. I have also heard that if it does work that you have to keep upping the dose to get the same results. I was interested to hear t...

Hi My name is Denise and I live in Sandstone Point near Bribie Island Queensland Australia. I was diagnosed a few months ago although I have been having symtoms for nearly ten years. I have noticed it has slowly got worse it used to be just while waiting in line for the bus that I noticed it. Now it...