Search found 490 matches

by admin
Wed Mar 15, 2023 6:32 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: 2023 OT Newsletter!
Replies: 2
Views: 13385

Re: 2023 OT Newsletter!

Hi Peggy

Thank you for the very nice tribute. Gloria cherished your friendship. And thank you for everything that you have done for the OT community. The OT meetings and the research would not have happened without your tireless work.

Wishing you and the extended OT community all the best.
by admin
Sun Jan 29, 2023 10:42 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: 2023 OT Newsletter!
Replies: 2
Views: 13385

2023 OT Newsletter!

The 2023 OT Newsletter is now available! Click on the link below: https://www.orthostatictremor.org/Newsletters/0123_OTNewsletter.pdf Or visit the newsletter page on the website, this page also includes a link to the previous newsletters: https://www.orthostatictremor.org/Newsletter/newsletter.html ...
by admin
Tue Apr 05, 2022 11:52 am
Forum: OT- "THINGS" that help
Topic: SmartPhone apps and the OT tremor... (update)
Replies: 10
Views: 14766

Re: SmartPhone apps and the OT tremor... (update)

In 2017 The team of Danish Bhatti MD, Rebecca Thompson MD, Amy Hellman MD, Cynthia Penke RN, John M Bertoni MD, Diego Torres-Russotto MD published a very helpful study on the use of smartphone apps to assist in screening for Orthostatic Tremor. Unfortunately one of the Apps in the paper “Lift Pulse”...
by admin
Tue Nov 30, 2021 7:55 pm
Forum: OT- "THINGS" that help
Topic: Spinal cord stimulator for POT
Replies: 1
Views: 1471

Re: Spinal cord stimulator for POT

Hi Marianne Below are 2 links to research on SCS for Orthostatic Tremor. The first research was done in 2006 and the second from 2016 is a long term follow up on the initial research. "The mean standing time improved from 51 s (SD 47 s, range 4-120 s) pre-operatively to 220 s (SD 184 s, range 1...
by admin
Sat Oct 31, 2020 5:06 pm
Forum: OT - Surveys
Topic: Survey # 2 - Thoughts, Questions, Feedback
Replies: 2
Views: 2191

Survey # 2 - Thoughts, Questions, Feedback

Hi, The results for the Symptoms and Diagnosis of OT survey have been posted on the website. The new survey is available in English, French and Dutch. The link to view the presentation can be found on the website Home page under OT SURVEYS or you can click on the following link: https://www.orthosta...
by admin
Tue Mar 03, 2020 3:41 pm
Forum: NORD - 2019 OT Research Grant
Topic: 2019 Research Grant Awarded!
Replies: 0
Views: 9112

2019 Research Grant Awarded!

The OT research grant for 2019 has been awarded! This new research grant, and the 2 previous NORD grants have been made possible by the donations from the OT community. This is not a trivial thing for a small but dedicated group of people to achieve - Congratulations! 2019 Research Grant Recipient -...
by admin
Wed Feb 12, 2020 9:03 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Miss use of the OT website.
Replies: 2
Views: 2906

Re: Miss use of the OT website.

Hi Adrianne -

We do our best to keep these people off of the site, unfortunately this one slipped through. Their account has been deleted and banned.

best regards,
by admin
Thu Jan 09, 2020 7:23 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Cautionary tale; it's not always OT
Replies: 7
Views: 9340

Re: Cautionary tale; it's not always OT

Hi Patty

I’m sorry for what you are going through. Thank you for posting this caring information to help others.

You are in our thoughts and prayers.

YES, beat this thing! and hoping you get back home soon.

Jeff
by admin
Thu Dec 19, 2019 11:32 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: 2019 year end letter
Replies: 2
Views: 16487

Re: 2019 year end letter

Hi Peter

Thanks for the response, the online survey is now closed and the survey team is presently collating all of the responses.

all the best, and Happy Holidays
by admin
Sun Dec 01, 2019 3:08 pm
Forum: Research Papers
Topic: Differences in brain structure from MRI data of patients w/ Orthostatic Tremor and Essential Tremor
Replies: 0
Views: 4951

Differences in brain structure from MRI data of patients w/ Orthostatic Tremor and Essential Tremor

New research paper from Julian Benito-Leon, Elan D. Louis, Virginia Mato-Abad, Alvaro Sanchez-Ferro, Juan P. Romero, Michele Matarazzo & J. Ignacio Serrano After studying differences in brain structure as seen from MRI derived data of patients with Orthostatic Tremor and Essential Tremor, they a...
by admin
Fri Nov 22, 2019 10:21 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: 2019 year end letter
Replies: 2
Views: 16487

2019 year end letter

Below is the group email that was sent to all members: Dear OT Friend: Earlier this year we heard from a 43-year-old man with OT who described how he could no longer stand more than 30 seconds, saying that, “this disorder has cost me my career as a retail pharmacist, has cost me my family, and has ...
by admin
Wed Aug 07, 2019 9:28 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How can we get the app LiftPulse back for iPhone????
Replies: 6
Views: 2835

Re: How can we get the app LiftPulse back for iPhone????

I know someone who works for google and might attempt a conversation. Verily is the division of Alphabet Inc (Google) that acquired the products from Liftware Liftware - https://www.liftware.com/ Verily - https://verily.com/projects/ But, StudyMyTremor may do the trick. There isn't much of a differ...
by admin
Mon Aug 05, 2019 9:43 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How can we get the app LiftPulse back for iPhone????
Replies: 6
Views: 2835

Re: How can we get the app LiftPulse back for iPhone????

The following link describes the use of LiftPulse and iSeismometer. Liftpulse is no longer available on iOS as you have discovered and was dropped after the company was purchased by Google. iSeismometer is a less user friendly app but one of.. if not the earliest apps to be used for human tremor tes...