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Re: Being an advocate

 by admin ¦  Thu Jun 14, 2018 7:11 pm ¦  Forum: OT- "THINGS" that help ¦  Topic: Being an advocate ¦  Replies: 1 ¦  Views: 74

Hi Roberta

Well done! and great ideas

best regards

Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel María Ruiz-Julián1, Jorge Luís Orozco1 & Alexandre Gironell1* 1Movement Disorders Unit, Department of Neurology, Hospital de la Santa Creu i Sant Pau, Autonomous University of Barcelona, Catalonia Background: Primary orth...

New Research from the University of Nebraska Medical Center OT Research: Comprehensive, blinded assessment of balance in orthostatic tremor; Danish Bhatti, Rebecca Thompson, Yiwen Xia, Amy Hellman, Lorene Schmaderer, Katie Suing, Jennifer McKune, Cynthia Penke, Regan Iske, Bobbi Jo Roeder, Ka-Chun S...

New Research from the University of Nebraska Medical Center OT Research: Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor Danish Bhatti, MD, Rebecca Thompson, MD, Amy Hellman, MD, Cynthia Penke, RN , John M Bertoni, MD , Diego Torres-Russotto, MD* Orthostatic ...

New Research from the University of Nebraska Medical Center OT Research: Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor Danish Bhatti, MD, Rebecca Thompson, MD, Amy Hellman, MD, Cynthia Penke, RN , John M Bertoni, MD , Diego Torres-Russotto, MD* Orthostatic ...

Re: EMG readings

 by admin ¦  Sat Dec 16, 2017 12:45 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: EMG readings ¦  Replies: 3 ¦  Views: 563

It’s interesting that you would be considered for DBS without first being confirmed as having OT. Has your group been successful with DBS and OT and possibly they could put you in touch with those people?

Re: Florida clinical trial

 by admin ¦  Fri Oct 20, 2017 12:26 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: Florida clinical trial ¦  Replies: 61 ¦  Views: 5140

Update from Warren - Subject: OT 8-month Update. On Feb.7 & 8, 2017, I had the clinical trial at the Univ. of FL in Gainsville. Initially it really helped. The treatment effects are slowly wearing off. Now I have trouble standing still and always want to lean on something of sit down. I avoid doing ...

Re: New to the forum? post a quick introduction

 by admin ¦  Sun Oct 08, 2017 8:30 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 937 ¦  Views: 78082

Click on the link below to read the report from the 2017 OT Meeting (thanks Pat for the great report!)

Click to read the UNMC Orthostatic Tremor Research and Meeting 2017 report

UNMC Orthostatic Tremor Research and Meeting 2017 Report

 by admin ¦  Sun Oct 08, 2017 8:28 pm ¦  Forum: 2017 Omaha OT Meeting and Research - Dr Torres ¦  Topic: UNMC Orthostatic Tremor Research and Meeting 2017 Report ¦  Replies: 1 ¦  Views: 991

Click on the link below to read the report from the 2017 OT Meeting (thanks Pat for the great report!)

Click to read the UNMC Orthostatic Tremor Research and Meeting 2017 report

NEWS FROM THE 2017 Omaha meeting -

 by admin ¦  Thu Sep 28, 2017 10:08 pm ¦  Forum: 2017 Omaha OT Meeting and Research - Dr Torres ¦  Topic: NEWS FROM THE 2017 Omaha meeting - ¦  Replies: 2 ¦  Views: 1066

A news article with video has been posted on the KETV Omaha news website: LINK TO ARTICLE and VIDEO UNMC leads international research on Orthostatic Tremor University of Nebraska Medical Center hosted the largest international study on Orthostatic Tremor, a rare, debilitating disease that makes peop...

Re: New to the forum? post a quick introduction

 by admin ¦  Thu Sep 28, 2017 10:06 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 937 ¦  Views: 78082

A news article with video has been posted on the KETV Omaha news website: LINK TO ARTICLE and VIDEO UNMC leads international research on Orthostatic Tremor University of Nebraska Medical Center hosted the largest international study on Orthostatic Tremor, a rare, debilitating disease that makes peop...

Re: New to the forum? post a quick introduction

 by admin ¦  Thu Aug 24, 2017 12:54 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 937 ¦  Views: 78082

Hi Vanna - With thousands of posts on the forum it can be challenging. The fastest method to research anything on the forum is to search on a word. If you are using a desktop or laptop computer you can click on the magnifying glass in the topmost menu. Then type in the word and hit return. If you ar...

Re: New to the forum? post a quick introduction

 by admin ¦  Thu Aug 24, 2017 10:31 am ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 937 ¦  Views: 78082

Hi Vanna

Below are links to 3 of the topics about vision, prism glasses and OT:

viewtopic.php?f=1&t=800

viewtopic.php?f=1&t=784

viewtopic.php?f=1&t=709&start=30

Re: SmartPhone apps and the OT tremor... (update)

 by admin ¦  Mon Jul 17, 2017 4:49 pm ¦  Forum: OT- "THINGS" that help ¦  Topic: SmartPhone apps and the OT tremor... (update) ¦  Replies: 4 ¦  Views: 3207

Hi GardenLily It's unfortunate that the app developers have stopped updating LiftPulse. There are a couple other tremor applications available. In my opinion these applications had the most potential for people to help define or at least point in the correct direction. To help decide whether it may ...

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Being an advocate

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2017 Omaha OT Meeting and Research