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Orthostatic Tremor: An Update on a Rare Entity

 by admin ¦  Mon May 29, 2017 11:52 am ¦  Forum: Research Papers ¦  Topic: Orthostatic Tremor: An Update on a Rare Entity ¦  Replies: 0 ¦  Views: 8

Orthostatic Tremor: An Update on a Rare Entity. A review of 219 research papers on Orthostatic Tremor. Authors - Julián Benito-León and Ángela Domingo-Santos Link to full article OT is a rare and singular movement disorder that is characterized by tremor of the legs and trunk, and is present on stan...

Re: Googling key words did not find your wonderful site

 by admin ¦  Tue May 23, 2017 7:03 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: Googling key words did not find your wonderful site ¦  Replies: 1 ¦  Views: 38

Hi Mark Glad that you found the website! Especially today because the site has gone through several rounds of updates today. The site is google friendly, but the words may need to be more specific. For example if you added "standing" along with your words it's likely that it would appear on the firs...

Re: New to the forum? post a quick introduction

 by admin ¦  Wed May 17, 2017 4:10 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 845 ¦  Views: 63499

Hi Vanna

So sorry this is a difficult time, hopefully this forum and its members will be of some support to you.

Wishing all the best,

A new research paper that describes the possible reason why SCS helped with Parkinson's disease: “Based on recent evidence, we argue that neurological disorders such as PD can be broadly classified as diseases emerging from abnormal neuronal timing, leading to pathological brain states, and that the...

This is an interesting article about a researcher that has created a device to help a friend with Parkinsons. It reminded me of the small successes that have reported recently about the use of spinal cord stimulation and OT. “It’s like injecting white noise into that feedback loop in order to disrup...

A blinded assessment of balance in patients with orthostatic tremor

 by admin ¦  Thu May 11, 2017 7:36 am ¦  Forum: Research Papers ¦  Topic: A blinded assessment of balance in patients with orthostatic tremor ¦  Replies: 0 ¦  Views: 24

A blinded assessment of balance in patients with orthostatic tremor Danish Bhatti1, Rebecca Thompson1, yiwen xia1, Amy Hellman1, L Schmaderer2, Cindy Penke3, Regan Iske1, John Bertoni1 and Diego Torres-Russotto1 Objective: The objective of this study was to assess the balance of patients with ortho...

NORD statement on the American Health Care Act

 by admin ¦  Sun May 07, 2017 8:11 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: NORD statement on the American Health Care Act ¦  Replies: 0 ¦  Views: 37

The National Organization for Rare Disorders Issued a Statement on the Passage of the American Health Care Act: “Today the House of Representatives passed American Health Care Act (AHCA). We are very disappointed the House pursued and passed this legislation, and we will continue to do everything we...

Re: Cannibis Oil

 by admin ¦  Fri Apr 28, 2017 1:38 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: Cannibis Oil ¦  Replies: 3 ¦  Views: 117

Below is a response from Catherine - I am also interested in the subject of cannibis oil in treatment of OT. I was diagnosed with OT in 2018 . I am now on a cocktail of Neurontin and Xanax and despite this my disability has worsened considerably. A few years ago I went on a holiday to Amsterdam with...

Information regarding OT meeting and Research - Omaha 2017 As we advised in our year end letter, Dr. Diego Torres-Russotto and his team from the Nebraska Medical Facility will be conducting their 3rd research studies this September 25 – 29, 2017 in Omaha, Nebraska. Just to confirm also – all expense...

UNMC - Update 4/6/2017

 by admin ¦  Sun Apr 09, 2017 9:32 pm ¦  Forum: UNMC - OT Fund Updates ¦  Topic: UNMC - Update 4/6/2017 ¦  Replies: 0 ¦  Views: 61

The balance in the UNMC - OT Fund as of 4/6/17 is $32,445.00.

Re: First Mayo meeting

 by admin ¦  Thu Mar 23, 2017 9:27 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: First Mayo meeting ¦  Replies: 3 ¦  Views: 94

Hi Patty You are correct April 28, 2008 - Below are a couple links to discussions and the original video of the meeting - https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=23&t=329 https://www.orthostatictremor.org/phpBB3/viewforum.php?f=12 Wishing you all the best success with your surgery. ...

Re: New to the forum? post a quick introduction

 by admin ¦  Wed Feb 15, 2017 10:51 am ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: New to the forum? post a quick introduction ¦  Replies: 845 ¦  Views: 63499

Hi All -

I have moved an interesting discussion that started here on "Dental occlusion, jaw alignment and OT?" to it's own topic located here > LINK

Dental Occlusion, jaw alignment and OT?

 by admin ¦  Wed Feb 15, 2017 10:38 am ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: Dental Occlusion, jaw alignment and OT? ¦  Replies: 9 ¦  Views: 208

what I found interesting from the article linked above: Our results lead to speculation that the afferent signals from dental occlusion may contribute most effectively in the process of balance control when more external perturbations are present (i.e. surface instability and muscle fatigue). .... i...

Re: Florida clinical trial

 by admin ¦  Tue Feb 14, 2017 4:22 pm ¦  Forum: OT- DISCUSSION, Questions, Thoughts and Advice. ¦  Topic: Florida clinical trial ¦  Replies: 43 ¦  Views: 1390

So glad to hear that your Dad is doing well! Thank you for the update.

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I think it hit me the worse at work when I had to […]

Orthostatic Tremor: An Update on a Rare Entity. A […]

Hoping for views and info from the group , as I[…]

thanks!

2017 Omaha OT Meeting and Research