Search found 21 matches
- Mon Dec 03, 2018 10:05 am
- Forum: Research Papers
- Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
- Replies: 13
- Views: 13592
Re: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
I began taking Fycompa 1 mg. on Oct 22, 2018. I cut a 2 mg pill in half. I take it in the morning. Tried to take it before bed, but it disturbed my sleep. I experience some sleepiness about an hour after I take it, but that is the only side effect so far. The first day I took it, I felt a strong rel...
- Sat Sep 03, 2016 11:13 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: OT Polling Series
- Replies: 3
- Views: 2578
Re: OT Polling Series
questionnaires.
- Sat Sep 03, 2016 11:03 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: OT Polling Series
- Replies: 3
- Views: 2578
OT Polling Series
Please visit the polling page on this web site if you would like to participate in the OT questioneers. Our information becomes more powerful with each new person who participates. Thanks so much!!
- Sat Sep 03, 2016 10:40 am
- Forum: OT- POLL
- Topic: REVIEW OF SYSTEMS, OT POLL #3, The Eyes
- Replies: 6
- Views: 2527
REVIEW OF SYSTEMS, OT POLL #3, The Eyes
This is the third in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Questions are...
- Wed Jun 29, 2016 12:56 pm
- Forum: OT- POLL
- Topic: Review of Systems OT Poll #2 - The SPINE
- Replies: 1
- Views: 1789
Review of Systems OT Poll #2 - The SPINE
Posted here is the second in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. Please consider becoming a participant in this poll. Please encourage others with OT to participate as well. Our information becomes more valuable with each person who respo...
- Wed Jun 15, 2016 11:58 am
- Forum: OT- POLL
- Topic: An OT Polling Series - Review of Systems
- Replies: 6
- Views: 2701
An OT Polling Series - Review of Systems
This is the first in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Questions are...
- Tue Jun 07, 2016 5:05 pm
- Forum: OT- POLL - series
- Topic: Poll # 1
- Replies: 0
- Views: 2585
Poll # 1
Poll #1 This is the first in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Quest...
- Tue Mar 15, 2016 12:45 pm
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Meeting Houston - March 10-11 discussion
- Replies: 20
- Views: 5911
Re: OT Meeting Houston - March 10-11 discussion
Thanks to all the wonderful people who coordinated this meeting. It was well thought out, convenient, and informative. It is so comforting to spend time with others who have OT and understand why you cannot stand up to chat! I had an appointment with Dr. Padula yesterday. He said he would be interes...
- Fri Nov 13, 2015 6:02 pm
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
- Replies: 27
- Views: 10134
Re: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
Yes,I would like to attend. Looking forward to it. Thanks to organizers!
- Fri Nov 13, 2015 5:59 pm
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
- Replies: 27
- Views: 10134
Re: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
Yes,I would like to attend.
- Thu May 07, 2015 10:57 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Give prisms, vision therapy a shot
- Replies: 44
- Views: 12859
Re: Give prisms, vision therapy a shot
My eye exercises are unique and hard to describe. They consist of saccadic eye movements in various postures, focusing on different points in the room. I have exercises to correct my posture while looking at and manipulating a "Padula Transformation Cube". Posture, balance and eye movement...
- Mon May 04, 2015 11:08 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Give prisms, vision therapy a shot
- Replies: 44
- Views: 12859
Give prisms, vision therapy a shot
I have been working with Dr. Padula since the Omaha conference last year with very good results. My energy level is very good. My ability to do things in standing is definitely improved. The combination of the lenses in my glasses and vision therapy have dramatically improved my quality of life. It ...
- Wed Dec 10, 2014 4:48 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Three people have had positive results with prisms.
- Replies: 14
- Views: 5307
Three people have had positive results with prisms.
There are now THREE people who have had a decrease in their OT symptoms with prism glasses. HOW EXCITING! I am so happy to hear this and hope others will consider trying this form of treatment. Jane Vece (me), Nancy and Linda have all had positive results. You can see the posts on page three of &quo...
- Wed Dec 10, 2014 4:46 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Eye related movement disorder
- Replies: 37
- Views: 10911
Re: Eye related movement disorder
Linda, how exciting!! I am so happy to hear of your success. We must continue to spread the word. Thanks so much for the post. Jane
- Sun Oct 05, 2014 12:56 pm
- Forum: 2014 UNMC - OMAHA OT Meeting - Research
- Topic: Reports from the Omaha Meeting and Research 2014
- Replies: 39
- Views: 11913
Re: Reports from the Omaha Meeting and Research 2014
It was so wonderful to meet every one in Omaha. What a great group of people. Thanks to all the organizers and researchers who gave so much of their time and talents. Nancy and I gave 2 presentations on our experience with our prisms. Thanks to all who attended. This is a copy of my notes. A few fol...