Search found 21 matches

by Janevece
Mon Dec 03, 2018 10:05 am
Forum: Research Papers
Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
Replies: 13
Views: 10007

Re: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel

I began taking Fycompa 1 mg. on Oct 22, 2018. I cut a 2 mg pill in half. I take it in the morning. Tried to take it before bed, but it disturbed my sleep. I experience some sleepiness about an hour after I take it, but that is the only side effect so far. The first day I took it, I felt a strong rel...
by Janevece
Sat Sep 03, 2016 11:13 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: OT Polling Series
Replies: 3
Views: 412

Re: OT Polling Series

questionnaires.
by Janevece
Sat Sep 03, 2016 11:03 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: OT Polling Series
Replies: 3
Views: 412

OT Polling Series

Please visit the polling page on this web site if you would like to participate in the OT questioneers. Our information becomes more powerful with each new person who participates. Thanks so much!!
by Janevece
Sat Sep 03, 2016 10:40 am
Forum: OT- POLL
Topic: REVIEW OF SYSTEMS, OT POLL #3, The Eyes
Replies: 6
Views: 1168

REVIEW OF SYSTEMS, OT POLL #3, The Eyes

This is the third in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Questions are...
by Janevece
Wed Jun 29, 2016 12:56 pm
Forum: OT- POLL
Topic: Review of Systems OT Poll #2 - The SPINE
Replies: 1
Views: 891

Review of Systems OT Poll #2 - The SPINE

Posted here is the second in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. Please consider becoming a participant in this poll. Please encourage others with OT to participate as well. Our information becomes more valuable with each person who respo...
by Janevece
Wed Jun 15, 2016 11:58 am
Forum: OT- POLL
Topic: An OT Polling Series - Review of Systems
Replies: 6
Views: 1403

An OT Polling Series - Review of Systems

This is the first in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Questions are...
by Janevece
Tue Jun 07, 2016 5:05 pm
Forum: OT- POLL - series
Topic: Poll # 1
Replies: 0
Views: 591

Poll # 1

Poll #1 This is the first in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor. These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Quest...
by Janevece
Tue Mar 15, 2016 12:45 pm
Forum: 2016 Baylor College of Medicine with Dr Jankovic
Topic: OT Meeting Houston - March 10-11 discussion
Replies: 20
Views: 3537

Re: OT Meeting Houston - March 10-11 discussion

Thanks to all the wonderful people who coordinated this meeting. It was well thought out, convenient, and informative. It is so comforting to spend time with others who have OT and understand why you cannot stand up to chat! I had an appointment with Dr. Padula yesterday. He said he would be interes...
by Janevece
Fri Nov 13, 2015 6:02 pm
Forum: 2016 Baylor College of Medicine with Dr Jankovic
Topic: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
Replies: 27
Views: 6250

Re: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic

Yes,I would like to attend. Looking forward to it. Thanks to organizers!
by Janevece
Thu May 07, 2015 10:57 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Give prisms, vision therapy a shot
Replies: 44
Views: 5637

Re: Give prisms, vision therapy a shot

My eye exercises are unique and hard to describe. They consist of saccadic eye movements in various postures, focusing on different points in the room. I have exercises to correct my posture while looking at and manipulating a "Padula Transformation Cube". Posture, balance and eye movements seem to ...
by Janevece
Mon May 04, 2015 11:08 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Give prisms, vision therapy a shot
Replies: 44
Views: 5637

Give prisms, vision therapy a shot

I have been working with Dr. Padula since the Omaha conference last year with very good results. My energy level is very good. My ability to do things in standing is definitely improved. The combination of the lenses in my glasses and vision therapy have dramatically improved my quality of life. It ...
by Janevece
Wed Dec 10, 2014 4:48 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Three people have had positive results with prisms.
Replies: 14
Views: 2653

Three people have had positive results with prisms.

There are now THREE people who have had a decrease in their OT symptoms with prism glasses. HOW EXCITING! I am so happy to hear this and hope others will consider trying this form of treatment. Jane Vece (me), Nancy and Linda have all had positive results. You can see the posts on page three of "Eye...
by Janevece
Wed Dec 10, 2014 4:46 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Eye related movement disorder
Replies: 37
Views: 6744

Re: Eye related movement disorder

Linda, how exciting!! I am so happy to hear of your success. We must continue to spread the word. Thanks so much for the post. Jane
by Janevece
Sun Oct 05, 2014 12:56 pm
Forum: 2014 UNMC - OMAHA OT Meeting - Research
Topic: Reports from the Omaha Meeting and Research 2014
Replies: 39
Views: 7927

Re: Reports from the Omaha Meeting and Research 2014

It was so wonderful to meet every one in Omaha. What a great group of people. Thanks to all the organizers and researchers who gave so much of their time and talents. Nancy and I gave 2 presentations on our experience with our prisms. Thanks to all who attended. This is a copy of my notes. A few fol...

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