Search found 208 matches

by Lake of the Woods
Wed Mar 15, 2023 2:44 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: 2023 OT Newsletter!
Replies: 2
Views: 13385

Gloria MacWright

Hello to all, We are mourning the loss of a great lady - Gloria MacWright passed away peacefully at her home last week Along with her son Jeff, Gloria founded this website in 2000. After many years she had finally received a diagnosis and wanted to establish a website to see if there were others out...
by Lake of the Woods
Thu Sep 03, 2020 12:21 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240687

Researcher in Australia

Hello, I had the good fortunate to meet Soon Lye via zoom sessions this past summer. A lady from the U.S. contacted me to advise that he was doing research and wanted to get information about OT from people who have this. I contacted Soon Lye and we set up zoom sessions with 5 other people with OT a...
by Lake of the Woods
Wed Sep 02, 2020 4:36 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Betty,
I was very sorry to hear about Patty's death. I remember her well from all the times she came to the research and travelled all that way to be there.

Please pass on to her husband my condolences - she will be missed.

Peggy
by Lake of the Woods
Wed May 13, 2020 2:29 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Possible Breakthrough Experienced by OT Patient
Replies: 4
Views: 13796

Re: Possible Breakthrough Experienced by OT Patient

Thank you for sharing this info. I will look forward to more updates from you on this.

Peggy
by Lake of the Woods
Sat Mar 14, 2020 6:29 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

I had a couple of inquiries on the details of renting an oxygen machine and then it was suggested that I post these details: I rented mine from a company called "Medigas". You would have to google oxygen supply company where you live. A nurse did come around but she really didn't do anythi...
by Lake of the Woods
Tue Mar 10, 2020 6:12 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hello, I don't think it is a appropriate for a member to write and advise this: From a medical point of view (Nursing), "Pure Oxygen" can be dangerous. It sounds like she has a background in nursing and that does not make her qualified to state this. Mike in Spain is under the care of his ...
by Lake of the Woods
Sun Mar 08, 2020 1:26 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Muscle fatigue - muscle deterioration - exercising
Replies: 14
Views: 6496

Re: Muscle fatigue - muscle deterioration - exercising

Hello Marla,
Thank you for taking time to share this info. I am definitely going to look into going back to the gym and trying this machine, just for strengthening leg muscles. I have been doing some leg strengthening exercises I got from physio.

Important to keep active that is for sure!

Peggy
by Lake of the Woods
Sun Feb 23, 2020 2:28 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Betty,
Good for you for trying this - I will be hoping that you have some success.

I sent you a private email a few days ago but suspect it may have gone to your junk mail as I haven't heard back from you.
Peggy
by Lake of the Woods
Sun Feb 23, 2020 1:16 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Oxygen treatment

I emailed Cathy from the U.S. who has also had positive results from the oxygen treatment. Unfortunately I have not heard back from her - I suspect the email went into her junk mail. I had talked to her and emailed her after her initial positive reaction to the oxygen and would like to get an update...
by Lake of the Woods
Thu Jan 09, 2020 5:11 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Cautionary tale; it's not always OT
Replies: 7
Views: 9320

Re: Cautionary tale; it's not always OT

Hi Patty,
I am so sorry that you are going through this. My thoughts are with you! You always struck me as a determined type of person - not one to back off anything so that will be a big factor in helping you get through this.

Keep us informed as your OT family cares about you,

Sincerely,

Peggy
by Lake of the Woods
Sun Nov 17, 2019 1:09 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hello to Mike and his wonderful wife, I have to admit, I have a lump in my throat when I read this - I am just so hopeful for you Mike! Funny that I am feeling so much pleasure in fact that YOU are doing well - someone with OT - and a friend I know with OT is doing well and that means a lot to me. Y...
by Lake of the Woods
Wed Nov 13, 2019 8:37 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Mike
This is wonderful! So is it up to you how often you use the oxygen at home?
I imagine you will have to experiment with this - ie. just using it at night?

I will definitely be talking to my doctor and hopefully get to try it also and will report back.

Best of luck always,

Peggy
by Lake of the Woods
Sun Nov 10, 2019 3:55 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Betty, I plan to make an appointment to see my family doctor - I don't see a Neurologist. I did in the beginning but realized fairly quickly that he couldn't do anything for me as I tried medications with no success. I will report back on the forum what happens - might take a week or so to get in...
by Lake of the Woods
Sat Nov 09, 2019 5:21 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Mike,
Thanks so much for all this info. I will let you know how I do.
Best of luck to you!

Keep smiling!

Peggy
by Lake of the Woods
Sat Nov 09, 2019 3:23 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 193932

Re: How is everyone?

Hi Mike, Could you tell everyone more details on this please. Are you in the hospital to test this oxygen use for OT? You said you this is the 3rd time you have been on oxygen and it stopped tremors in all cases. Please give more details on the last 2 times you were on oxygen: -Did you go in the hos...