Search found 21 matches

by magnbud
Tue Aug 14, 2018 11:30 pm
Forum: Research Papers
Topic: Orthostatic Tremor: An Update on a Rare Entity
Replies: 3
Views: 2297

Re: Orthostatic Tremor: An Update on a Rare Entity

I will admit to cloudy thinking at times. Some tasks requiring intellectual abilities seem more daunting than they used to and take me longer to complete. My Neurologist has told me some of it is a side effect of long term Neurontin use. Only a small percentage of patients have this side effect. I a...
by magnbud
Mon Jan 02, 2017 11:30 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 4338

Re: Standing Time? this is how long I can stand...

Hello Gloria and all of my OT friends. Happy New Year! I believe I am one of the fortunate ones as far as standing time goes. I have had OT about 13 years. With Neurontin, I can still stand for several minutes. I don't feel like it has progressed in several years. I do have an occasional bad day whe...
by magnbud
Sat Jan 10, 2015 9:19 pm
Forum: NORD - 2015 OT Research Grant
Topic: NORD OT research grant 2015!
Replies: 5
Views: 1576

Re: NORD OT research grant 2015!

This is such amazing news. How wonderful that OT was awarded this grant! We are really going places! Our efforts as a community are showing results and I am excited! Maggie
by magnbud
Sat Oct 11, 2014 2:42 pm
Forum: 2014 UNMC - OMAHA OT Meeting - Research
Topic: Reports from the Omaha Meeting and Research 2014
Replies: 39
Views: 8586

Re: Reports from the Omaha Meeting and Research 2014

It was just wonderful getting to see all of my OT friends again in Omaha. As Gloria says, it is truly the best medicine! Dr Torres and his staff are amazing and I am so grateful to them for their efforts. Peggy works so hard for us too and the meeting went smoothly. We are raising money and have awa...
by magnbud
Sat Apr 20, 2013 12:00 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Happy New Year!
Replies: 7
Views: 2653

Re: Happy New Year!

Hello Mary, I have gone to Dr. Joseph Jankovic at Baylor at his Movement Disorders Clinic for ten years. He is very knowledgeable and has done research on O.T. There are a number of other doctors in the clinic as well. You would get fine care there. My best to you, Maggie
by magnbud
Sat Nov 10, 2012 12:09 am
Forum: 2012 OT Meeting & Research - Omaha, NE USA
Topic: Photo Gallery from Omaha 2012
Replies: 4
Views: 1967

Re: Photo Gallery from Omaha 2012

Jeff, Thanks for everything you do to keep up with this website! It was a pleasure meeting you and your wife in Omaha.
by magnbud
Sat Nov 03, 2012 12:46 am
Forum: 2012 OT Meeting & Research - Omaha, NE USA
Topic: Reports from the front lines at the Omaha OT Conference
Replies: 25
Views: 7694

Re: Reports from the front lines at the Omaha OT Conference

Several people asked me for the name of my travel bag with the built in seat, and I didn't have it with me in Omaha. I have looked it up. You can find it online at walkinbag.com. I bought the Zip2 seat .... Wheels swivel, you can lean on the handle like a cane, seat folds flat to the back. The only ...
by magnbud
Mon Jun 18, 2012 12:01 am
Forum: NORD - 2012 OT Research Grant
Topic: NORD OT RESEARCH HAS BEEN ANNOUNCED!!
Replies: 11
Views: 3372

Re: NORD OT RESEARCH HAS BEEN ANNOUNCED!!

This is exciting news and I thank all who have worked so very hard to make this research possible.Lets hope they come up with some new insights into our disorder.
Maggie Neal
by magnbud
Wed May 16, 2012 1:23 pm
Forum: News, Media and misc. OT events
Topic: WOMEN OF WORTH AWARD
Replies: 7
Views: 2575

Re: WOMEN OF WORTH AWARD

Hello Everyone, I just completed my Women of Worth nomination form for Gloria and have it in the mail! I have also asked my Doctor ( Dr. Joseph Jankovic, Baylor College of Medicine Houston , TX) to send a letter on her behalf. I travel to Houston to see him next week and can follow up. The deadline ...
by magnbud
Tue Jan 03, 2012 10:49 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Progression
Replies: 27
Views: 6872

Re: Progression

Your description of your symptoms and how you lean on counters is exactly as I would describe mine! Good luck to you .
by magnbud
Mon Aug 29, 2011 11:14 pm
Forum: NORD - OT Fund Updates
Topic: WE HAVE REACHED OUR NORD GOAL!!
Replies: 17
Views: 7160

Re: WE HAVE REACHED OUR NORD GOAL!!

Fantastic news! Thank you to the ladies who worked so hard to make this happen and to every single person who donated money! Very exciting!!! Maggie Neal
by magnbud
Thu Feb 17, 2011 9:00 pm
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 12159

The Walkin" Bag- Zip Cart-Seat

Hello to my fellow friends with OT. I am leaving for Europe soon, and I have not found the need to use a wheelchair yet while travelling. I found a wonderful carry on bag with wheels and a handle that can take weight, so you can lean on it a bit. The bag rolls sideways, or behind you. Best of all a ...
by magnbud
Thu Apr 30, 2009 1:32 am
Forum: NORD - OT Fund Updates
Topic: How to donate to NORD - Together we can stand up to OT
Replies: 10
Views: 14073

Re: Together we can stand up to OT

This is wonderful news ,and is a big step toward someday finding real help for this unusual and misunderstood condition we have! Maggie in Tulsa
by magnbud
Thu Jul 10, 2008 1:22 am
Forum: 2008 OT Meeting Rochester MN USA
Topic: Thanks for OT meeting
Replies: 5
Views: 9189

Re: Thanks for OT meeting

Myrna, I have OT and have posted on this site before. I also have developed sleep problems in the past year or so. I was diagnosed in Houston about six years ago, and I take Neurontin, but took Klonipin for a few years. I have disturbing dreams and find that they are hard to shake when I first wake ...
by magnbud
Sat Feb 17, 2007 11:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Help is here !!!!!!!!!!!!!!!
Replies: 20
Views: 10963

Harry, Do you mean Lyrica? My doctor at Baylor Medical Center in Houston just prescribed it for me. I started taking it two days ago. I have taken Neurontin for several years. It has helped, but I still have plenty of issues with tremors. You give me hope that this new drug will be even more benefic...

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