The Orthostatic Tremor Forum (archive)

I live in FL where medical marijuana is legal. I started with a 1:1 ratio cbd to thc. Didn't help. Went to 40:1. Not sure yet as it takes awhile to adjust. I'll report back after I have used for a month.

The Dr I saw yesterday prescribed both the oil and a capsule. The oil She said would last for 2 hours but could be used 6 times a day. She said to take 1 capsule in morning and 1 mid afternoon. These last about 6 hours. I don't know the exact dosages because I have to wait about a month to get my mm...

I have an appointment tomorrow with a dr specializing in Medical marajuana. She will help me get my state card allowing me to get this and once I have my card I can get the med. marijuana guided and dispensed by the dr.
Praying this will help!

I live in Florida and would love to take part in the trials. How do I get involved?

My meds say to not use alcohol . But I would like to know about everyone who has tried CBD oil. I am interested in trying it, but have not yet spoken to my dr. My Physical therapist and Rock Steady Boxing instructor both suggested it. Would love more feedback.
Thank you. ..Bobbi

I was on an airplane for the first time in several years. I was fine going on, but for several days after the flight I had my worst tremors ever. I looked up air travel in relation to PD since there are more people with this disease and found that some people suffer terribly with rabid ascent....and...

I am posting the exercises that many of you have requested. Please refer to my posts about my success with Physical Therapy and you will understand that I first went through intensive PT for three months. I had been tested as "unsafe" and told that I needed a walker. I told them that I was...

Gloria and Rita, so sorry that it has taken so long for me to reply. Lots going on here. Since I saw you, I rapidly went downhill. I could not stand for ten seconds nor could I step off a curb without assistance. I was in trouble. My neuro changed my meds and sent me to PT 3 times a week. When I was...

I was taking a high dose of clonazepam and my dr wanted to lower it. I now take 1mg in the a.m. with 50mg of topomax. I take .5 clonazepam at noon and again at dinner. At bedtime I take another 1 mg of clonazapam and 25 mg of topomax. Together the pills seem to do the trick and I do feel good.

I had the wonderful opportunity to have physical therapy done twice a week at the Cleveland Clinic. I cannot tell you the difference it has made. I can actually stand and almost forget that I have OT. There are times that I forget to take my medicine in the afternoon because I am feeling so good. I ...

Hi Gloria...I hope lunch was fun. Sorry I couldnt make it. I don't know where I could find a yoga class like this. I am now going to pt 3 times a week to strength my legs and hips. (ew Neuro's suggestion). He also mentioned possibility of surgically implanting a tesnsor unit on my spine in the futur...

Very exciting news! I would love to attend and participate in the study and meet all of you! Could you please give us starting and ending times so that I can make reservations? I really hope to be there if I can.
Bobbi

Ok...I had problems with meds and my doctor has weaned me off of the requip and I only now take clonazapam. I have been going for accupuncture for a few weeks now and all of a sudden I am getting relief! I did not need to take any med until 1 PM for a few days this week, and my tremors are decreasin...

Thanks Golfnut. I also have been on clonazapam and requip. I had bad side effects from the requip and weaned off of it. Then my doctor suggested that I also wean off of the clonazapam. I was almost off of it when I had worsening of my tremors. It was awful...I thought that perhaps my diagnosis had c...

This is my second post...and it is after my second experience with accupuncture. I am learning a lot and seem to be seeing some effects. After my treatment this time I was able to stand still for at least a minute! For me....and probably most of you...this is sensational. I am ecstatic. This treatme...