Search found 32 matches

by adrianoconnor
Thu Jul 30, 2020 8:52 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: "Participate in a support group"
Replies: 16
Views: 9789

Re: "Participate in a support group"

Hi Betty. Glad to hear you are still managing to get around. Thank you for sharing your story. Lots of what you say seems to be a common experience to most of us. I know when I was diagnosed ( 7 or 8 years since) although I have suffered OT for some 14 or 15 years. I thought knowing what it was I wo...
by adrianoconnor
Fri Feb 14, 2020 10:19 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Miss use of the OT website.
Replies: 2
Views: 545

Re: Miss use of the OT website.

Well I must say that I am pleased that you have taken action. When you see such miss use it gives the wrong message. We can now enjoy using the site for its intended purpose. Many thanks,
Adrian O'Connor
Ireland
by adrianoconnor
Sun Feb 02, 2020 7:16 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Miss use of the OT website.
Replies: 2
Views: 545

Miss use of the OT website.

I've noticed that every day some one called " winborghi" puts an advert on our site. As this is a miss use I wonder could it be blocked before people start to feel the site no longer serves the intended purpose. I look at the site every morning and expect to read and share the joys and sufferings of...
by adrianoconnor
Wed Nov 20, 2019 11:20 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 99157

Living with OT

Hi Mike and Hi Mrs Mike. (sorry I don't have your name) When you talk about Mike going shopping and always on the move. You could easily be talking about me. You must be one of the few people without OT that has any idea what it is like. As far as the wheel chair goes, I can understand Mile's reluct...
by adrianoconnor
Thu Jul 18, 2019 7:08 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Accosted
Replies: 4
Views: 518

Regards from Ireland (second attempt)

Hi Bevnix. Happy birthday (belated) hope you had a good day. My family come from North Cork. My Dad's great or great-great uncle was a stone mason who worked on the Statue of Liberty. I think he was sent back home to Ireland when he finished the job. You mother-in-law might be a long lost relation o...
by adrianoconnor
Thu Jul 11, 2019 7:25 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Accosted
Replies: 4
Views: 518

Re: Accosted

Hi Bevnix. Sorry to hear you had to face an ignorant pig. Being a man and some times a bit aggressive, I would have told him what to do with himself. But my advice to you is to make a number of copies of the travel card and give it to anyone you encounter with a negative attitude. You will find the ...
by adrianoconnor
Fri Jun 21, 2019 6:33 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 99157

Re: How is everyone?

Hi Donna. Sounds like you're doing all the right things. I know how hard it is to try and lead a normal life with OT and other illnesses. But I guess we have to try. I've heard a lot about Fycompa and was wondering if was as good as people say. I'm thinking of giving it a try if my neurologist agree...
by adrianoconnor
Wed Feb 13, 2019 6:28 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 2522

Re: Perampanel

Hi Peggy. Take a look at this web page and see what you think.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5910539/

If you have a problem let me know.

Best wishes from Adrian O'Connor Ireland
by adrianoconnor
Tue Feb 12, 2019 11:33 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 2522

Re: Perampanel

Hi Peggy. Take a look at this web page and see what you think.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5910539/

If you have a problem let me know.

Best wishes from Adrian O'Connor
Ireland
by adrianoconnor
Sun Jan 20, 2019 6:41 am
Forum: Research Papers
Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
Replies: 13
Views: 10079

Re: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel

Hi Marianne . Just out of interest I Googled Fycompa and was not very impressed by what came up. It seem the side effects out weigh any benefits as far as I can see. It seems that all the medication for OT has some dreadful effects on the mind. Of course, I'm not a doctor so I can only suggest you t...
by adrianoconnor
Thu Jan 17, 2019 7:50 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 99157

Re: How is everyone?

Hi Mike. Hope you are well. Just came across your post with reference to travel and how hard it can be. For the last four or five years I have requested/booked wheel chair assistance when flying. I find I get treated like royalty and find it most enjoyable. When you get to the airport you go to the ...
by adrianoconnor
Sat Dec 15, 2018 9:13 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Where in the world is OT?
Replies: 18
Views: 12389

Re: Where in the world is OT?

Hi Theresaann. I know exactly how you feel. I've had OT for at least 12 years or more.But only diagnosed about 6 or 7 years. When I first found out what was wrong I felt s since of relief thinking there would be some medication to make it all okay. But alas thats not how it turned out. When I found ...
by adrianoconnor
Mon Nov 12, 2018 8:56 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Fluorescent Lighting
Replies: 3
Views: 585

Re: Fluorescent Lighting

Hi Theresaann. I have never given florescent light any though. But thinking about it, I never feel too good in a large store. So maybe you have a pint. Changing the subject. I do notice that a lot of the post on the OT website tend to be a little dated. I think I joined about six years ago. When I w...
by adrianoconnor
Mon Nov 12, 2018 8:54 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Fluorescent Lighting
Replies: 3
Views: 585

Re: Fluorescent Lighting

Hi Theresaann. I have never given florescent light any though. But thinking about it, I never feel too good in a large store. So maybe you have a pint. Changing the subject. I do notice that a lot of the post on the OT website tend to be a little dated. I think I joined about six years ago. When I w...
by adrianoconnor
Sun Feb 04, 2018 8:16 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1000
Views: 128760

The steady march of OT

Hi Mark. I hope I didn't offend you with my direct remarks. I have been suffering with OT for more than 10 years and diagnosed about 7 years. That's when I found the OT web site.(which is fantastic, thanks to Gloria) When I was diagnosed the neurologist put me on Gabapentin which did nothing for my ...

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