The Orthostatic Tremor Forum (archive)

Glad to have found this board and this doctor. he did say he has many Parkenson and MS patients and many of them belong to support boards. He said to be careful as those who are happy with their managment rarely participate, so boards often offer a skewed view of the illness mostly toward the pessim...

There is a nerve that runs down your arm and by your elbow that controls sensation to the outside of each hand, the little finger and the edge and tip of the rings fingers in both hands. Just since Feb. I've had numbness and tingling and the feeling I was wearing long glove with tight bands. I also ...

I had EMG testing on my legs, arms and hands. They used a combination of shocks and some nasty needle in the fleshy parts of my hands that drew blood. As I already have a dx of ET and POT, this was for peripheral neuropathy. The neurologist found a third dx for me of bilateral neuropathy effecting m...

For air travel, a rolling carryon can also be used as a rolling seat. Joust get the kind that are free standing with the handle extended and you can easier sit on the end of the suitcase while waiting in line...I always did.

Betty, because my OT and ET have been established, my EMG is for peripheral neuropahty in both arms and legs from the elbows/knees down. The office called today and they said with meds as what they are measuring will not be effected. Joye

I was switch from 1 mg xanax per day plus "as needed" to take before any stress events to clonazepam and didn't skip a beat stopping on and starting the other. I also take inderal for ET along with lithium for bipolar. As I've taken and responded well to lithium, I would never take any ant...

I recall symptoms as far back as 1986. because I am also bipolar and take medications, my husband, doctor and I all assumed the tremors where side effects as they seemed to increase with stress, heat and exhaustion. After feeling like I was going to fall for years, I did fall, missing one step resul...

I'll find out, but was told it would be like acupunture needle with a brief electoshock to get a reading. I've had acupunture and it only hurt if needle literally hit a nerve. I was also told to take my Klopopin that day which would have me into that med two weeks. I've read here lots of people bein...

My EMG is for peripheral neuropathy in both arms below the elbows and legs below the knees, not the OT. I've been told EMG can pinpoint the problem causing the neuropathy. And yes stress, even happy excitment can cause problems...also heat.

Thanks Gloria, Yes, I'm having an EMG on the 11th. I'm trying to absorb all the information here as there is so little information about OT generally. It seems lots of other people have a lot going on and every description of symptoms is personal. I distinctively recal having this since the mid 1980...

Thank you for the welcome! I live in western Illinois, almost Iowa 30 minutes from my widowed mom who still lives in Iowa. I was caring for her until she had a stroke 5 weeks before I feel. Luckily I got her in-home care then so now, when I understand more why I could not pick her up off the floor b...

Hello, My name is Joye. I just turned 60 and was diagnosed with OT last Thursday. Actually I knew something was wrong with my legs since the 1986 or so. I worked as a Corporate Director of marketing and did lots of events, meetings,trade shows and travel. Early on I knew i could not stand long in on...