The Orthostatic Tremor Forum (archive)

Hi Paul ...Good question ....:) I too found a drink helps me walk and cope better ...I ask my GP is there something aquivelent,as I felt I didnt want to go down that path !!#!.... I do drink wine to get me through a tight social evening , but with an alcoholic father am very aware of the side effec...

Hi Margie I don't believe that the research has started, but I have not spoken to anyone with the research team. The updated notes on the clinical research say that they are still recruiting participants. http://bit.ly/rTMS_OT_ClinicalStudy In regards to the Fl. Trials, I did contact the Dr. Who wa...

Hi Margie I don't believe that the research has started, but I have not spoken to anyone with the research team. The updated notes on the clinical research say that they are still recruiting participants. http://bit.ly/rTMS_OT_ClinicalStudy In regards to the Fl. Trials, I did contact the Dr. Who wa...

Thank you Jennifer for taking the time to put this list together and post. It was really really helpful..
Angel

Hi Dan, I was wondering if your acupuncture is still working for your tremors. We spoke couple years ago, I did try about 20 treatments, but it did not work for tremors, but maybe some for anxiety. As we all know is a big part of the mental aspect with OT. Thought maybe I would try a different Dr th...

Hi betty, was reading your recent post and was happy to hear you say that it doesn't matter what the emotions is, happy, excited,sad, angry, worried, whatever it makes my tremors worse! I guess that's why anti-depressants help some people. They keep your emotions on a even keel!! Tks for post, and e...

Hi everyone, I have only posted maybe a couple of time, as I have no good advice for anyone. Sounds like were all just doing the best we can. I do have a question, recently I have had tightening and harden of my calf muscles. Wakes me me up at night aching. Was wondering if anyone else has had that,...

I went to family doctor, because I had extremely fast tremor in my left leg above my knee cap, when in the shower! Then it started doing it in both legs. I thought it was anxiety , because it got really bad when standing at cocktail party or just standing and talking to someone. The minute I sat it ...

[quote="cinsim1@yahoo.com"]Hi everyone, I have used the cane that turns into a stool, but my arms are happier if they have something to hold on to, so a chair w/ arms is best for me. I use a cane only when I am out in public because it tells people that I have a problem w/ my legs and I us...

Hi Everyone, I've had OT for about 7 years! Have in legs and arms!! I am a firm believer on exercise, It has helped me, I do spin classes 3-4 times a week and brisk walking in between and it seems to at least make me strong and really helps the depression that comes along with this disease! I have n...

Hi Mark, I as everyone else on this site, have OT! I noticed you mentioned that you have in arms, and so do I especially when I have to do something with my hands above my head, or if I have to do something with my arms being straight, but only if I'm standing. And trying to write if I'm standing, l...

Hi Dan, Was so excited to hear that the acupuncture is working for you. I also have been doing acupunture for the last 3 months,twice a week. I feel on a scale of 1-10 my improvement would be a 6. My Dr on the other hand has not tried putting the needles on my legs. I also have tremors in my hands. ...

Hi Mark, I started acupuncture last week. The Dr. told me that she did not know if it would help with OT, but it would help with anxiety, which seems to make mine worse. So I will let you know if I feel it is helping. She also is a MD. so it is paid for by my BCBS. You might want to see if you can f...

Hi Kaylie, Thanks for responding. I know this site is going to be such a blessing for me. So hard to explain to people, what I have. Like many others have said, I look very healthy except for my shaking, in hands and legs, and feels like its my whole body when I get into stressful situation at work ...

Hi everyone, I can't tell you all how excited I am to find this site. I have also been to a number of Drs. and they don't seem to know what I have or what to do for me. When explaining my systoms they just look at me dumb founded. When I started doing some research myself I found this site. And eure...