The Orthostatic Tremor Forum (archive)

Hi everybody, I have found a new product that makes bathing/ showering feel much safer. It is a soft, spongey type bath mat 17"x 36" that is held securely to the bottom of the bath by suction cups. It is machine washable and described as 'the most comfortable mat you can buy'. I agree, I c...

Dear Peggy,
That is marvellous news. Thank you for all your hard work and perseverance. What a wonderful contribution....even NORD were impressed!
Helen

Hi Everybody, It is ages since I have been into the website and was thrilled to see that the funding process is moving along. Thank you Pat for all the work that you have done. I called the office of The National Organisation for Rare diseases and they accepted my donation using my credit card. It w...

Dear Dave,
Thank you so much for your helpful input. I have quickly looked at the questionnaire and much of the content is very relevant to us. I will take a closer look later and see how much we can incorporate and what we may need to add.
Thank you again I appreciate your help.
Helen

Would members find it helpful to have an online questionnaire with the purpose of providing a baseline regarding our OT symptoms and treatment? The questionnaire could be downloaded and completed on an annual basis so creating a record for ourselves which also could be shared with our physicians. I ...

I think that my 'official' diagnosis was 2 years ago at age 64 but I have had the symptons for about 10 years. I also have some thinning of my bones and this July had a very minor fall that resulted in a crack in my thigh and painful bruising of the bones. ( The diagnosis via MRI was reached in late...

I was diagnosed officially last August but have known that there was something wrong since the late nineties. I am taking clonazapan to help me deal with the stress of travelling or attending special occasions. I do not chose to take it regularly incase I have to up the dosage to be effective. In Oc...