Search found 27 matches

by margie1627
Wed Jun 20, 2018 1:23 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: perampanel
Replies: 0
Views: 829

perampanel

I really am interested in the report about perampanel. I'm wondering if the O.T. website and Gloria could influence the clinical study of this drug. It certainly sounds promising and merits our real consideration. Do we have such ability? I guess I'm really asking you, Gloria. What do you think? Als...
by margie1627
Tue Jun 19, 2018 2:39 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Perampanel
Replies: 20
Views: 2432

Perampanel

I am surprised that there is no response or discussion of the very interesting report posted by Gloria. Complete resolution os symptoms of Primary Orthostatic Tremor with Perampnael. Has anyone tried iT or know anything about it? This sounds very exciting to me. I will follow up with my neurologist ...
by margie1627
Thu May 17, 2018 9:44 am
Forum: Research Papers
Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
Replies: 13
Views: 10008

Re: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel

I'm surprised at the lack of interest in this news. Has anyone made any effort to try perampanel? I certainly will explore this with my neurologist when I get to see her in July. (unfortunately I have to wait till then because of maternity leave, but i sure hope someone can substantiate this result ...
by margie1627
Thu Dec 28, 2017 10:43 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: Spinal cord stimulation trail successful but denied permanent implant
Replies: 5
Views: 3634

Re: Spinal cord stimulation trail successful but denied permanent implant

Hi, I'm still wondering if you have had any success in getting a permanent implant. I'm also following the clinical trial being conducted in Paris in which they are placing the device exteriorly. The action could be the same. but does't involve surgery. I look forward to your thoughts. Thank you,Mar...
by margie1627
Sat Dec 23, 2017 9:25 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: MRgFUS Treatment for ET
Replies: 2
Views: 914

Re: MRgFUS Treatment for ET

What is MRgFus treatment?
by margie1627
Thu Nov 09, 2017 2:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1000
Views: 127258

Re: New to the forum? post a quick introduction

Please change that to Cape Cod. Duh!
by margie1627
Thu Nov 09, 2017 2:40 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1000
Views: 127258

Cape Cod

I'd love to know anyone on capered who has OT. :?:
by margie1627
Sat Oct 07, 2017 11:06 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: information and video of Omaha meeting
Replies: 2
Views: 2182

information and video of Omaha meeting

I'm looking forward to information and results of Omaha meeting. When will they be posted? Thanks
by margie1627
Sat Sep 16, 2017 6:07 pm
Forum: OT- "THINGS" that help
Topic: Sharing a New Wearable Chair Concept
Replies: 2
Views: 881

Re: Sharing a New Wearable Chair Concept

Hi Mike, I contacted them also and got the same reply. I'd be really interested in your experience if you do try one. It looks pretty cumbersome to me and wouldn't be useful for walking . Good luck
by margie1627
Mon Jul 31, 2017 10:39 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: Spinal cord stimulation trail successful but denied permanent implant
Replies: 5
Views: 3634

Re: Spinal cord stimulation trail successful but denied permanent implant

Hi Annetta, I am so interested in your experience and am glad you are sharing it with us. I just think it is so promising and wonder how you were able to get a doctor to do it. Was it his idea? My Doc. does not seem to be willing to try it. I'm also surprised that it has not gotten more attention o...
by margie1627
Thu Jul 13, 2017 9:00 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 6462

Re: 2017 September OT Meeting/Research

Hi Gloria and Peggy, I am pleased to see that Annette will be a part of the Sept.meeting. Her
experience is so promising. I wonder if you have any plans to live stream the conference or use
the telepresence robot so that those of us who can't attend can be a part of it. Thanks, Margie
by margie1627
Fri Mar 10, 2017 9:13 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: After Illness
Replies: 5
Views: 838

Re: After Illness

My experience has been that any anxiety provoking condition--right now I have a broken arm--increases tremors, probably because of anxiety. I wonder if others agree. Margie
by margie1627
Sun Jan 15, 2017 4:13 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Spinal stimulator trial successful
Replies: 7
Views: 1253

Re: Spinal stimulator trial successful

That is very discouraging to hear,Annettarn. did they give you any idea of how much it would cost
without insurance coverage? I really hope you can work something out. I have passed your experience on to my doctor
and will discuss it with him. Thanks so much for being "the first".
by margie1627
Sun Jan 01, 2017 1:49 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Spinal stimulator trial successful
Replies: 7
Views: 1253

Re: Spinal stimulator trial successful

This sounds like an interesting and promising breakthrough. Is it possible to get more information that I can pass on to my doctor in Boston. Dr. Torres contact info or Dr. who performed surgery? I'd really appreciate some more info. Thanks , Margie

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