Search found 19 matches

by gardenwoman
Thu Jul 14, 2016 12:17 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: What can I/we do to help raise awareness of OT?
Replies: 1
Views: 581

Re: What can I/we do to help raise awareness of OT?

Hello, here is an opportunity for all of us living in ENGLAND UK The neurological alliance is doing a survey which will include OT of course. So please consider completing it and putting "on the map" so to speak. http://www.neural.org.uk/campaigning/making-the-case-for-stronger-services/patient-surv...
by gardenwoman
Mon Jan 18, 2016 2:02 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Neurological Physiotherapy
Replies: 6
Views: 1061

Re: Neurological Physiotherapy

That's one of the main problems with our condition - no one can see it or know what it feels like if they don't experience it themselves. I find that even those I tell, can forget. I really is disabling and made worse by the fact that there is such lack of belief/understanding. Maybe we should try t...
by gardenwoman
Sat Jan 16, 2016 11:16 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Neurological Physiotherapy
Replies: 6
Views: 1061

Re: Neurological Physiotherapy

Thank you for your replies Gloria and Adrian. I have made no further progress myself so will be very interested to know how you progress Adrian. I will let you know if I do find out anything
Best wishes
by gardenwoman
Wed Jan 13, 2016 2:05 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Neurological Physiotherapy
Replies: 6
Views: 1061

Neurological Physiotherapy

Hello everyone, Sorry its been such a long time. The OT is getting worse for me and I am wondering what to do next. Has anyone here had help from a Neuro Physiotherapist? There is a group nearby that specialises in this, and I know they do a lot with people who have Multiple Sclerosis - I guess its ...
by gardenwoman
Mon Sep 02, 2013 2:22 pm
Forum: OT- "THINGS" that help
Topic: Topro Troja Rollator anyone tried one?
Replies: 1
Views: 837

Topro Troja Rollator anyone tried one?

Hello all, I am thinking of replacing my very basic, heavy and bulky rollator with a Topro Troja. They are expensive, but light weight and appear to be more easy to use. Has anyone had one of these themselves? They of course do have a seat :) .
Best wishes
Maggie
by gardenwoman
Tue Feb 12, 2013 10:24 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Broken leg how to recover can you help?
Replies: 1
Views: 602

Broken leg how to recover can you help?

I broke 2 bones in my leg and some in ankle 7th December last year. It has been a difficult journey with many complications, 3 operations and pins, plates and screws, and only just out of plaster and ready to weight bear, so I need now to learn to walk again. Not able to use crutches because of trem...
by gardenwoman
Fri Apr 02, 2010 4:10 am
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 12150

Re: post your product reviews here.....

Cant agree more, Maureen, I have mentioned this item before on the OT site. I got mine through ebay, you can also order them from the manufacturers directly. There is also a 4 wheeled verson that sometimes I feel might be better for me because I could push it and have more control over it therefore ...
by gardenwoman
Sun Aug 16, 2009 11:18 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 107585

Re: How is everyone?

hello Mike, sorry to hear of your troubles. I thought I would ask if you have Antiphospholipid Sydrome (APLS) also known as Hughes Syndrome (after professor Graham Hughes at St Thomas' hospital in London)? This can have many symptoms tremor and movement disorders being just a couple of them. Since i...
by gardenwoman
Tue Aug 11, 2009 4:48 am
Forum: News, Media and misc. OT events
Topic: GLORIA NELSON TO RECEIVE GOVERNOR'S AWARD FOR VOLUNTEERISM
Replies: 15
Views: 9870

Re: GLORIA NELSON TO RECEIVE GOVERNOR'S AWARD FOR VOLUNTEERISM

I am sorry its rather late, but non the less well meant. Congratulations Gloria, this is a very well deserved award and I hope you enjoyed the event as much as you appeared to. All the very best xx
by gardenwoman
Thu Mar 05, 2009 12:21 pm
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 12150

Re: post your product reviews here.....

HI I have that same sling cane and i find it very handy. I also use a walker . Sometimes if i am making a short trip to the supermarket i will put my cane in the cart and take it out to sit on as i need to. regards stella Hello I can no longer manage with a cane seat because I get too shaky in the ...
by gardenwoman
Wed Feb 04, 2009 3:11 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 107585

Re: How is everyone?

Hello Patty & all I too watched the Horizon programme last night and had a similar thought. I mentioned the subject to the Neurologist last time I went and they are supposed to be checking it out for me. Hopefully (but unlikely) I will get a useful answer when I next go back in about 3 months time. ...
by gardenwoman
Fri Dec 26, 2008 8:26 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 107585

Re: How is everyone?

Hello everyone, This is about something that helps but I am posting it here because these seem to be the most read posts and the message needs to be read quickly . There is a 4 wheeled shop-a-seat for sale on eBay uk that is currently only 99p, It ends at 10.45am on Sunday 28th. I have got one mysel...
by gardenwoman
Mon Sep 22, 2008 5:33 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Publicity? / German TV programme
Replies: 0
Views: 994

Publicity? / German TV programme

A few weeks ago I was in a chatroom (for people with Lupus) & mentioned my OT. One of the members mentioned that there had been a programme on tv in Germany about a woman with OT who "had to keep moving all the time, poor woman". Unfortunately, I couldnt persue this because person who mentioned it s...
by gardenwoman
Thu Jul 31, 2008 11:05 am
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 12150

Re: post your product reviews here.....

I have just seen an advertisement for a trolley with a fold down seat, more like a normal shopping trolley than the ones that are especially made for people with a disability. I wonder if anyone has tried this? its called "the out &about roller the trolley with seat" from http://www.homgar.com. It s...
by gardenwoman
Fri May 23, 2008 4:09 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Developing an OT Questionnnaire
Replies: 10
Views: 2297

Re: Developing an OT Questionnnaire

I agree, a great idea to share and to have something to track our own progress. The medical profession dont seem to be doing much. It seems so unfair when there is research into some diseases that are so much more rare (not that I begrudge them).

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