The Orthostatic Tremor Forum (archive)

The lead up events to this have been going on for years. I was previously a health care professional myself and I am so frustrated that I have to do the research - present the possibilities - and wait out the endless testing. Every diagnosis that the doctors have given so far have been wrong - so no...

Thanks for your response. I just completed testing for SCA at NIH(Movement Disorder Clinic) in late October - before the jelly legs symptoms really showed up. The results of SCA testing were negative. In a recent phone discussion re those results I brought up this tremor issue. OT was suggested as a...

I'm not sure whether I belong here or not. The OT diagnosis has been suggested to me but no testing has been done. I have a diagnosis of ataxia (there is supporting MRI evidence of cerebellum degeneration) but tests for known SCA disorders was negative so now I am once again in search of answers. I ...