Search found 22 matches

by kate
Mon Sep 19, 2011 10:21 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194206

Re: How is everyone?

Hey Dave, You mentioned in the book you are reading that people don't realize they have a tremor problem. I have to say that I spent almost four years going to doctors for my "balance problem". I had many diagnosis...inner ear issue, migraine associated vertigo, mal de debarquement, ataxia...
by kate
Thu Sep 08, 2011 3:54 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194206

Re: How is everyone?

Hi, I have this too. I feel like my jaw and tongue get worn out easily. It is the same ache I get in my legs and arms if that makes any sense. I told my doctor at my last visit. He made a note of it but didn't explain it....probably because there is no explanation. I notice it more when I am eating ...
by kate
Thu Aug 11, 2011 5:37 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240995

Re: New to the forum? post a quick introduction

Joye, I am sorry you did not have an easy day. I can see how discouraging it would be. I am very curious what your symptoms of the neuropathy are? Do you feel like none of these conditions are related also? I am curious what surgery would do? Hang in there. It does take awhile to get it all sorted o...
by kate
Thu Aug 04, 2011 10:48 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240995

Re: New to the forum? post a quick introduction

Hi, Just thought I would clarify. The EMG I was with needles placed in my muscles and then my muscles put into different positions. The nerve conduction study followed which was small electric shocks. After that I had another test where they stuck electrodes on my legs and arms. There was no pain at...
by kate
Thu Aug 04, 2011 5:19 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240995

Re: New to the forum? post a quick introduction

Hi Joye and Marlana, I have had an EMG several times. It is painful but not too terrible. I had one done at the University Hospital here and then at Mayo. I will say Mayos was more painful and I had pain later that night. When I mentioned it the next day they said that was common. I had it done duri...
by kate
Tue Aug 02, 2011 4:40 pm
Forum: NORD - OT Fund Updates
Topic: WE HAVE REACHED OUR NORD GOAL!!
Replies: 17
Views: 10133

Re: WE HAVE REACHED OUR NORD GOAL!!

This is fantastic news!!! Thank you to everyone who has worked so hard and made donations to make this possible. The next couple of years will be very exciting. This is such great news!!

Kate
by kate
Tue Jun 21, 2011 3:52 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194206

Re: How is everyone?

Hi Jo, I read your post with interest. I also have the voice tremor. Not all the time but it pops up here an there. You also mentioned that you felt like you had a motor running. I also have that. I notice too that if I am touching something that vibrates my body seems to continue the vibration. I d...
by kate
Tue May 03, 2011 8:32 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Multiple symptoms
Replies: 3
Views: 3324

Re: Multiple symptoms

Hi Vallis, I am so glad you are feeling better. I would be very interested to know about your symptoms and also the neuropathy. I have something else going on in addition to the OT. I was doing some searching today and came across neuropathy and it got my attention. It seems like there is a wide ran...
by kate
Fri Apr 15, 2011 9:21 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: A new leg to my journey
Replies: 17
Views: 7010

Re: A new leg to my journey

Hi Cheryl, I am SO happy for you. This is great news. I can't tell you how much I appreciate you sharing your journey. Even if the Lyrica does not help some at least it provides hope that there something out there that may help. I am seeing my doctor in a couple of weeks and plan to ask him about th...
by kate
Sun Apr 10, 2011 7:14 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: OT and clonezapam-- any success?
Replies: 10
Views: 4492

Re: OT and clonezapam-- any success?

Hi, I have tried the clonezapam in the past and I felt that it made me worse. I know it has helped a lot of people but that was not my experience. I am also very sensitive to medications but I don't know if that had anything to do with it or not. Maybe after you are on it awhile you will notice a di...
by kate
Tue Mar 15, 2011 1:59 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: A new leg to my journey
Replies: 17
Views: 7010

Re: A new leg to my journey

Hi Cheryl, Thank you so much for sharing your experiences. It really helps me to know what others have tried, the successful and not so successful. I hope the Lyrica works for you. I bet that day you stood in line for a coffee was not a day you will soon forget. That must have been an amazing feelin...
by kate
Tue Nov 30, 2010 9:44 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: What is you day like?
Replies: 2
Views: 1662

What is you day like?

Hi, I was wondering if anyone could tell me what a typical day with OT is like for them? It seems like there are many people with OT that are able to get out and about and manage quite well. I was reading a post about falling and some people commented about their poor balance. My balance is shot as ...
by kate
Fri Oct 22, 2010 6:29 pm
Forum: 2010 OT Meeting - Atlantic City, NJ USA
Topic: Our Successful 2010 Meeting !!!
Replies: 8
Views: 10400

Re: Our Successful 2010 Meeting !!!

Thank you for posting the information from the meeting. Sounds like there was a lot of interesting discussion. It is interesting to see the ideas and questions that people wonder about. I'm sure it is uplifting to be around others who share the same daily stuggles. Thank you for sharing with others....
by kate
Tue Oct 12, 2010 2:33 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Vitamin B
Replies: 5
Views: 2792

Re: Vitamin B

Hi Guys, I recently spoke with a neurologist who told me that I should make sure that my B12 was on target along with B6. I knew that B12 could cause neurological issues (and mine has been low) but had not heard anything about B6. I did some research and had a hard time finding anything about it. I ...
by kate
Tue Oct 12, 2010 1:58 pm
Forum: OT- "THINGS" that help
Topic: Acupuncture!!!!!! It Works!!!!!!
Replies: 61
Views: 27870

Re: Acupuncture!!!!!! It Works!!!!!!

Hi Dan, Thanks for the information. Just to make sure I have this straight. You did the acupressure first. Did you notice any results with that or was it just after the acupuncture that you noticed a change? I was also curious if it has been hard to regain the strength in your legs? Thanks and have ...