The Orthostatic Tremor Forum (archive)

Thank you to all who gave us such a wonderful opportunity to participate in this very interesting event. I learned so much; not just from the speakers but to others of you who had so much to share. It was also gratifying to finally meet others who also had this "disease". I have had OT or ...

I am looking forward to the meeting in Omaha. It will be my first meeting with you. It will be so affirming to meet the people who write on here. I have not written much other than introduction although I do read the forum. We are traveling a much shorter distance than most of you. We will drive in ...

I am so happy to report that there is this meeting and research. I still have never met anyone with my symptoms. My husband and I will be attending the meeting in Omaha. I will be so interested to meet others with OT. I was diagnosed in Rochester in November of 2009. Thanks to Gloria and Peggy and m...

Wendy, my heart goes out to you. I am 76 and have had this condition for a long time but never knew what it was. I joined the OT forum In Nov. 09 after I was in Rochester by Dr. Matsumotto. I only knew of him and the condition called OT because of an article a friend gave me from "Tremor Talk&q...

I visited Mayo Clinic in November of 2009. Is there any new research since then?

I am a 76 year old female. I live in SD but also in AZ for winter. I was diagnosed with OT on Nov. 2, 2009 after dealing with this problem for 30 years. I have been told that I have "Ataxia, that I was depressed, live with it." I was elated to finally have a diagnosis. Just this month I fi...