Gloria:
I just tested my standing time. I stood still with my feet about 15 inches apart.
After one minute i started to become uncomfortable.
I forced myself to stand, however, and lasted for a total of 3 minutes.
( Stop watch timed)
Regards
Dwight
Search found 25 matches
- Wed Mar 29, 2017 1:38 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Primidone
- Replies: 7
- Views: 3932
- Mon Mar 27, 2017 1:00 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Primidone
- Replies: 7
- Views: 3932
Re: Primidone
I am on primidone and have been on for a number of years. I take 200 mg/day
I do not think that it does any good or has it ever. I suggested to neurologist that we run a test and see if there is any reaction.
He just said no, keep on taking it, it is helping you
End of story
Dwight Kraai
I do not think that it does any good or has it ever. I suggested to neurologist that we run a test and see if there is any reaction.
He just said no, keep on taking it, it is helping you
End of story
Dwight Kraai
- Sat Mar 25, 2017 12:04 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Tilt Table Test-Beware
- Replies: 1
- Views: 2940
Tilt Table Test-Beware
A heads-up tilt table test is a way to find the cause of fainting(s). It is not a test for orthostatic tremor but is frequently used in testing for orthostatic hyper tension. Background : At 8 am Sat March 18, 2017 I was sitting on a stool in the kitchen when I felt light headed. I remember saying t...
- Fri Mar 10, 2017 3:44 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 195323
Re: How is everyone?
It is my opinion that OT consists of both balance problems and vibrating legs.
We learn to compensate for our vibrating legs and similarity we learn to compensate for our balance broblems.
Dwight Kraai
We learn to compensate for our vibrating legs and similarity we learn to compensate for our balance broblems.
Dwight Kraai
- Sat Jan 02, 2016 8:21 am
- Forum: 2016 Baylor College of Medicine with Dr Jankovic
- Topic: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
- Replies: 27
- Views: 10372
Re: OT Presentation, March 10, 2016 with Dr. Joseph Jankovic
Hello Trpprjh: Thanks for bringing to our attention that your cousin has been diagnosed with OT. That OT has a heridatary aspect has been thought probable for some time. OT is similar to ET which has a strong heridatary aspect. (Granted that OT and ET are not the same even though they are similiar )...
- Wed Jul 15, 2015 12:48 pm
- Forum: Research Papers
- Topic: Long-term course of Orthostatic Tremor
- Replies: 2
- Views: 2499
Re: Long-term course of Orthostatic Tremor
This is an important study and seems to answer the question as to if OT is progressive much as we do not like to hear it. It certainly is the case with me. I have often been asked is OT progressive with you or are you just getting older? Getting older just compounds the problem of OT.
Dwight Kraai
Dwight Kraai
- Mon Dec 01, 2014 7:50 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How many people have OT?
- Replies: 15
- Views: 32515
Re: How many people have OT?
Dear All Members:
Congratulations to Gloria whose web site just signed up its 1000th. member.
We may not know how many people have Orthostatic Tremor but we do know there are 1000 we can communicate with.
What a wonderful addition Gloria and her web site have made to our lives.
Dwight Kraai
Congratulations to Gloria whose web site just signed up its 1000th. member.
We may not know how many people have Orthostatic Tremor but we do know there are 1000 we can communicate with.
What a wonderful addition Gloria and her web site have made to our lives.
Dwight Kraai
- Mon Nov 18, 2013 5:33 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242246
Re: New to the forum? post a quick introduction
Sample pages: http://bit.ly/18hQjCj
The source of my reference. It is also listed in an email 2 or 3 up
Dwight
The source of my reference. It is also listed in an email 2 or 3 up
Dwight
- Mon Nov 18, 2013 4:22 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242246
Re: New to the forum? post a quick introduction
An early concern about this book and the author. One can download the first 3 or 4 chapters. In chapter 2, page 5 the author quotes her neurologist's diagnosis as "Orthostatic tremor, also known as shaky leg syndrome". wrong, but, maybe this comparison is clarified later in the book These ...
- Thu Apr 18, 2013 8:57 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242246
Re: New to the forum? post a quick introduction
Hi Lia: A survey on this web site show OT affects women to men in a 2 to 1 ratio. Not a true test as women have a longer life span and OT usually does not show up until later in life but a good number to use. If you have the means I suggest that you go to a top notch movement disorder clinic or hosp...
- Wed Feb 27, 2013 11:56 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: How is everyone?
- Replies: 719
- Views: 195323
Re: How is everyone?
Hello Cindy:
Your positive attitude is fantastic. OT can be as you say a pain in the b..., but, it is not life threating as is MS.
You referenced that your Father had OT. Was he diagnosed? That is of interest in that it suggests that at least in some situations OT may be inherited.
Dwight Kraai
Your positive attitude is fantastic. OT can be as you say a pain in the b..., but, it is not life threating as is MS.
You referenced that your Father had OT. Was he diagnosed? That is of interest in that it suggests that at least in some situations OT may be inherited.
Dwight Kraai
- Wed Feb 06, 2013 4:13 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242246
Re: New to the forum? post a quick introduction
Liz:
How old were the neurologists?
Thanks goodness you have found this site. Slowly on OT is being better recognized, although old neurologists and many family physicians still have not heard of OT
The best to you.
How old were the neurologists?
Thanks goodness you have found this site. Slowly on OT is being better recognized, although old neurologists and many family physicians still have not heard of OT
The best to you.
- Sat Jan 12, 2013 7:15 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242246
Re: New to the forum? post a quick introduction
Hi JoanC and other OT friends. JoanC wrote: "One other note before I sign off: Not sure if I read about it here or in another place, but I find the iPhone app iSeismometer to be a great way to show people (including doctors) exactly what you are telling them about your tremors." I have an ...
- Wed Dec 19, 2012 2:56 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Wonderful news for essential tremor
- Replies: 1
- Views: 1515
Re: Wonderful news for essential tremor
This appears to be a type of deep brain stimulation (DBS). I heard a Dr. who does DBS for Essential Tremor say that he would never do it for Orthostatic Tremor.
- Tue Nov 06, 2012 3:05 pm
- Forum: 2012 OT Meeting & Research - Omaha, NE USA
- Topic: Suggested questions for the researchers
- Replies: 6
- Views: 3121
Re: Suggested questions for the researchers
Hi Betty: In reference to your #15 above. "(15) Stress greatly exacerbates the symptoms of OT. [Personal note: Public speaking while standing at a podium and talking into a microphone drives the OT symptoms through the ceiling, as in, they get much, much worse]" I have been active in city ...