The Orthostatic Tremor Forum (archive)

Eager and willing to travel to Paris, Perth or Nebraska to help the research. Please let me know who I need to contact to volunteer my trembling body. Thanks

Clonazepam brings back bad memories but Gabapentin has been OK.

Good luck with the exercise regime, hope it works. I have also tried Clonazepam but gave it up because of the side effects. Gapapentin seems to work much better for me. I sympathise with your feelings on the general apathy from the medical profession. Having previously been mis-dagnosed with Benign ...

Driving has presented no real problems so far although I have noticed difficulty in regaining balance after travelling on bumpy roads. I assume that most people over 5o would experience similar difficulties.

Has anyone else noticed any variation in the effectiveness of different manufacturers varieties of Gabapentin? My last batch was dispensed in screwtop bottle (which was awkward to negotiate) rather than the blister packs. They tasted of petrol and did not seem to have the same sedative effect. As a ...

[quote="gloria"]Jitterbug: Unfortunately all things that we try to participate in socially require a lot of explaining of what our limitations are and the need to ask for help in accommodating us to make it doable. Perhaps by letting them putt out first and you sit in the cart until they f...

We can all sympathise with your plight having shared similar experiences and suffered the jibes and ridicule. This forum is a good starting point for increasing awareness and understanding. keep the comments flowing! When you go for your tests ask the neurologist to check your arms as well as the le...

As a new contributor and occasional participant I would like to say how much I am impressed by the general sense of humour and exceptional forbearance displayed by the mebers of our blogsite. Are these traits associated with our condition? There might be a Research paper in there somewhere to which ...

Jitterbug just joined the Forum but has suffered as long as many others. I am learning to cope, there are worse, much worse things to endure but I must agree this is an awkward complaint. I just got back to playing Golf and would appreciate any tips from fellow sufferers as to how to cope with the p...