Search found 7 matches
- Tue Feb 13, 2007 12:28 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Should we be thinking about setting up an OT Foundation?
- Replies: 2
- Views: 2541
setting up a foundation
I don't know what it will take, but I think there are more of "us" out there then we know about and I think we need to get some research done. So, perhaps setting up a foundation is a good idea, if not too much of it went into overhead. That is always the problem, i.e. paying someont to se...
- Thu Feb 01, 2007 6:44 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: ot reports
- Replies: 3
- Views: 3588
other meds to try
I have given up the beta blockers which left me too lethargic to move and am now on topomax, which is actually a migraine medicine, 100 mg./day, with 100mg./night of primidone (antiseizure med.) with some good results over the last year plus. Still need a shopping cart for long trips but I can do so...
- Fri Aug 26, 2005 12:31 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Orthostatic intolerance
- Replies: 2
- Views: 3784
Fight the depression
Response to Lauras31... I have had recognizable OT for several years now and it hit just as I was retiring from 20 years of teaching and planning a long and active retirement. I also have a new Grandson that I am afraid to pick up and hold sometimes because I am afraid of losing my balance. I finall...
- Thu Aug 18, 2005 12:53 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Anyone also suffer from orthostatic hypotension?
- Replies: 2
- Views: 3910
response to diag08..
Hi, there, I hate to speak from so little experience but I think your doctor may not be on the right track. I had very low blood pressure all my life, only getting 'spikey' after menopause. The neurologist put me on propranolol (about 100mg /day) and primodone (at night only) which lowered my BP eve...
- Tue Aug 16, 2005 2:47 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Meds for orthostatic tremor
- Replies: 16
- Views: 11767
new drug ideas
Hi, I'm new to this site and finally doing something proactive, i.e. research on my condition. I take propranalol (about 80 mg. throughout the day) and primidone (nights only). I always had low blood pressure and I get the feeling that with these drugs lowering the pressure even more I can hardly fi...
- Tue Aug 16, 2005 2:24 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Some great success
- Replies: 11
- Views: 7111
vertigo related?
Query to Chris, my actual clear onset of OT seemed to occur after a severe bout in inner ear inflamation that had me reeling with vertigo for several weeks. Do you have any indication that the two conditions are related? My first go round with the doctors kept missing the OT because they blamed my l...
- Tue Aug 16, 2005 2:15 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 242292
introducing myself, a new member
Hi, I have been disabled by OT for several years, with a correct diagnosis only more recently. I find myself getting down about not being able to do the things I have always done easily. I have led a fairly physically active life until this hit. I still look quite fit although I have gained nearly 2...