Hi! My name is Bea. For about three years I suffered from episodes where my legs would collapse and I would have to sit down before I fell down. My doctor blamed it on low blood pressure (which I do have 70/40 is farirly normal for me). But I was put on Mididrone and my BP increased, but the episodes continued. I think I went to every kind of specialist possible, but all the tests they did were normal, except for the BP. I also have have familial tremor since my early thirties (I am now 72).
I finally insisted that I wanted to go to a clinic in Scottsdale, Arizona and have a thorough workup. Instead I went to a neurologist in Seattle, Dr. Nago. He immediately diagnosed me as having OT and confirmed it with an EMG.
I am now on Mirapex .25 mg. twice daily, Clonazepam .5 mg. twice daily, and Primidone 50 mg. daily.
I find I am very sleepy and my thought process seems slow, But I have only had 2 mild episodes in the last three months.
I am planning on talking to my pharmacist and, if he advises changes, I will talk to Dr. Nago.
My tremor seems to be increasing in my hands.